Sunday, June 21, 2015

The "Longest" Day Alzheimer's Awareness Month....

http://www.alz.org/abam/overview.asp

The "Longest" Day Alzheimer's Awareness Month....





"Go Purple" and Pledge to Help Fight Alzheimer's Disease! June is the awareness month for this horrible disease...


Such a critical health issue, that effects so many around the globe. My Grandfather suffered from this tragic disease, and my Grandmother had dementia, which seemed like the beginnings of Alzheimer's also. It was terrible and sad to watch how much this truly changed my Grandfather. Every once in a while, you could see the glimmer in his eyes that he knew myself and my 2 kids. My daughter was only about 2 years old at the time, would crawl up and sit in his lap and put her arms around him! You could tell he knew who she was, and in the next moment, he maybe frightened that "men" were watching through the windows, or rats were coming through the floor... it is a horribly bad situation, that many live with for years and years, both the patient and the family members.


Find on Facebook at:

https://www.facebook.com/actionalz 

Happy Father Day To all of the Fathers, Grandfather, Father to be, and those men that have been like a "Father" to some...


    Wishing All a very Happy and Beautiful Father's Day!

While I have this on my mind, and before I decide to probably run over and visit Mom, I thought I would say "Happy Father's Day" to ALL of the Dad's out there!!!!! My Dad passed away 10 years ago this past March 27th. Even though it has been 10 years, I still miss him almost everyday of my life. I find myself at times wondering how he would "do something" I may be working on, or when I am tending to my plants and lawn, how beautiful his lawn, garden, flowers and all used to be. I have all kinds of great memories, from "running over him" when I was 6 with my brand new bike. I begged for him to take the training wheels off and he finally did. He was working on some quail pens in the garage, he used to raise them, and I forgot the "brakes"... LOL... I ran right into the garage, over the pens, Dad and all... when I recall it now, it is just too funny... he was a man of many talents, from singing, to loving the outdoors, his lawn, a garden, he made home made jelly, he loved to hunt and fish... and I was just a bit of a tomboy back then, so just about anywhere he went, I wanted to be right there beside him.. I think many things I've learned from gardening and plants, to wanting people to just tell the truth, and he was the same, he would rather hear the truth no matter how badly it maybe, than to lie to him... He was "Overprotective" of me, but I came along many years after my half-brother... who went into the Air Force when I was about 5 or so, and spent 20 years all over the world until he retired. So, I was like an "only child" and a girl also. He like everyone was not perfect. But, I loved him and still do no matter how perfect or imperfect times were. He taught me the love of "people"... he enjoyed being around people, and always had the utmost respect, and I feel he was always well liked around our community. So, in honor of my own Dad, Minnis, and to ALL Dad's here and those who are now not on this Earth... I wish all a wonderful Father's Day!!! Enjoy your family, kids, spouse, friends... time flies by too fast.... Rhia Steele

Saturday, June 20, 2015

Medicare, Disabilities, Chronic Illnesses, Chronic Pain... and going through the "hoops" to get the help we need...

Morning gals and guys... or guys and gals, however you want to put it. I realize I've been almost "quiet" the past couple of days, which is not like me.

I've been doing several things, from continuing on my spring/summer "cleaning"... believe me when I get into one of these moods, if it is not "nailed down" it may just get thrown away, given away, or whatever... but it will not stay in this house for sure.

I do this about 2 - 3 times a year. I guess we all have a certain "time" that we decide it is time to "junk away"... I am not a "hoarder" by no means. But, I do believe in hanging on to some items, knowing there will come a time, I will decide I need a certain item.

So, like many, I have a "guide" I go by. If I have not needed it, thought about it, worn it, looked at it... for OVER a year or a bit more... then it's time to either get rid of it, or decide to use it in whatever way I intended.

I don't like to be one of those who hangs onto every plastic butter bowl, or every coffee can, or old towels, sheets, or even clothes. Usually on my clothes, I have a few tops I wear around the house daily. They are probably not really fit to run to town in, but okay enough for around the house. Then I have some I wear for everyday errands. Those I wear to run errands in, to the market, to Wally World... and when they get to the place, they are looking kind of "not all that great", I use those around the house, and by then it is more than time to "chunk" away the other old house tops. You can bet by then, they are stained, probably are beginning to have a few tiny holes in them and so on.

As far as my "dressy"... more go to the Casino, out to eat, or something else ... that I feel I need to dress up for... again, I go through them a couple of times a year. If I have not put it on, thought about it, even remotely considered doing anything in it, then usually it goes to Good Will, if it is still in good shape. I try my best NOT to have LOTS of stuff, that is totally NOT going to be worn here in my closets. Thus, a couple of times a year during the season changes is a great opportunity to take them and let someone else get some use out of them. I do the same with magazines, books, and the like. If I can "reuse", then I do... if I can give it to others to recycle, reuse, etc... I do... If none of those sound feasible, then usually it goes over to "Soul's Harbor"... which is a store, that everyone does the same. Whether clothes, furniture, dishes, you name it... and you don't really want to throw it out, then we take them there. You can get a receipt for a tax write off, but I don't even worry over that. I always tell them, if you can sell it, or whatever... great, if you cannot... the get rid of it however you do....

Okay, so I've been in the middle of all of that stuff, along with getting rid of 2 old computers, an old desk, some speakers, and just some "general" stuff that rather than let me hauled off in the trash... we have a couple of people that come around and pick up some items, especially if there is any metal in them... they sell it to one of our "steel" businesses here. That way those thing get recycled, the guys can get a few bucks out of them, and that means less waste in our landfills for sure.

I know my family gets tickled at me. I can find some real "odd" uses for some stuff, but when I finish, they are totally amazed. A few years back, we had a pretty good sized tree limb come down. IT was pretty straight, and fairly thick. It was also long enough, in my head, I could see it cut into about 18 inch long pieces, and make flower arrangements with them. So, we cut them in a couple of different lengths. I went around my house and found some of my silk flowers, then went to our "Dollar Tree" and picked up a few more, and 'voila', I had three beautiful flower arrangements, at that time for Christmas!!!

I had one for my table, one of the office and one for the living room! Between some left over ribbon, and lace, a few silk flowers, some floral wire... and a bit of imagination, they appeared to be something you may buy at one of these "DIY" sales, where people sell their items they make. Then I got the idea, I would change them for the different holidays. So I had some flowers and things for Valentine's Day, Memorial Day, Easter... Thanksgiving, and one year even St. Patrick's Day! I found some "green silk flowers" and I had some white ones, and with a bit of green and white ribbon, that made a cute centerpiece on a table or on the desk, or sitting in the living room.

OF course, here I go again, taking the "back way" around what I wanted to write about in the beginning of this.

I read an article this morning about an extremely "lucrative" (for the crooks) scam that took place all over this nation, in regard to "false claims" from Medicare. This is such a horrid thing, ANY PHYSICIAN is NOT a true doctor, if they are ripping off their patients. That is called greed, and any one in the medical profession and others are no professional if they take advantage of something as "fragile" as Medicare is. It just burns me to NO END, that the very people that NEED to be seen by physicians, that cannot AFFORD for our Medicare system to go "belly up" are the ones that suffer from this unspeakable crime. Even though they took down the largest fraud ring ever in this, I am sure there are others out there doing it also... and it appears that Medicare has tightened up and is paying more attention to these kind of schemes. Florida of course is a huge one, but there were several states including Texas involved in this.

Due to migraines, chronic pain, fatigue an  ALL THAT GOES along with disabilities also, NEED there disability (Medicare) also to help keep their health hopefully in check. I know of course some of you are not thrilled about the idea of those on disability... but I PAIN into my Social Security and Medicare for over 25 years before I had to file for my disability. So, I don't feel that I've taken advantage of anyone or anything. I just could not work anymore due to all of my health issues, and I've had to accept the fact, they are NOT MY FAULT! The Lupus, Sjogren's, RA, and so on... "just happened"... I've done nothing as far as I know to cause them....


IT took me a long time to understand, I am not to blame... I didn't go and do something within my life, as far as I know to "cause" me to become ill. You would be surprised though how many of us want to blame ourselves for it,

No chronic illness and/or chronic pain issue is FUN! They are all serious, and they change your entire life and your quality of life in many instances is truly sunken into the depths of the unknown... losing friends, spouses, family... to those horrid diseases, that we have little or no control over.

All we can do is take one step in front of the other, one moment at a time... and continue to hold on to what we can do, have, and hope for in the future.....

I've not disappeared at all... just been extremely busy... for one, fighting of two flares, making changes around my home, as you see above, and trying to fit some of the pieces of me, that seemed to have gotten lost in all of the drama... of daily life....


http://www.medpagetoday.com/PublicHealthPolicy/Medicare/52207


Monday, June 15, 2015

I am here still with the Flares, and more... Lupus. RA, Xeljanz, insurance, and Chronic Illnesses and Pain

 I 've added 3 photo's of what the side on my right knee looks like now.

I thought I should post, so everyone would not think I had up and disappeared! LOL!!! I would imagine "some" people could care less if I disappeared forever and to eternity! ;)  But, that is another very LONG story for another TIME when I feel I can "blog" a bit more as far as my own situation goes. For now, first of all, I am thrilled to be helping WEGO on several projects. I also am of course continuing my Platinum Ambassador activism. I also of course also post, blog, and so on about other chronic illnesses, and chronic pain. My pain level has been out the roof! Yet, I realize that others are either as bad as I am, OR possibly worse. I have been just as busy as a bee with things here at home. From taking down old desks, cleaning closets and dresser drawers, sanding on the inside windows in the spare room... to getting rid of LOADS of things that either have not been used in eons, never will be, are probably to old to use, and things that are generally worn out. I HATE a home full of "stuff" that is just that, stuff. So, I am pairing down a great deal of everything in each and every nook and cranny of this house. I am also in the process of finding my Mom an Orthopedic doctor. She has got to have her hip seen about. It is to the point that even Mobic, and it is a strong NSAID is not helping her. She is "still limping that leg and hip. So, it is more than time to have it X-rayed and get a specialist to either give her an injection into that hip, or something needs to be done. Of course my own issues with my hips, both, and lower back are also nuts. I had to POSTPONE the discograph again due to these flares and the "immune" situation for now, especially with prednisone... thus I am GOING to have that done a week from today on the 22nd... and I hope this time I can get there, and get it over with. I am ready (well no one is ever ready) to discuss "what" needs to be done, not done, and how to deal with the ordeal. I have to get a huge amount of blood work done, especially the "TB Gold" test, before my insurance will think about covering Xeljanz. So, I will go in later in the week to get that done. Then if the insurance will okay it, I will be trying the Xeljanz for the RA etc. I know I had a couple other things to "say" but now I cannot remember them... alas brain fog... ;)

Saturday, June 13, 2015

Paul Gileno speaks out for ALL of us with Disabilities!!!! Now it is OUR Turn to tell Rand Paul how we feel about his comments!

 

 

U.S. Pain Foundation President Speaks Out Against Senator Rand Paul's Disability Comments
 





http://myemail.constantcontact.com/Founder---President-Paul-Gileno-Defends-those-with-Disabilities.html?soid=1103157487426&aid=A6wnyF06XsU

Now it is OUR Turn! Open Your mind and mouth, and/or email hands and type how you feel about these remarks. 



We must stand up not just for ourselves but ALL that suffer disabilities.


#USPain