The CDC, and others in GOVERNMENT do not KNOW WHAT TRUE SEVERE DAILY CHRONIC PAIN IS LIKE FOR MANY OF US WHO ARE TRUE PATIENTS!!!!!

I am so INFURIATED at the NEWS as well as the CDC, government, and THOSE WHO SO STRONGLY OPPOSE ANYONE NEEDING PRESCRIPTION PAIN MEDICATIONS, that I HAD to get up and turn the channel a bit ago!!! I had turned my computer off earlier in the day due to severe "dry lightening and thunderstorms" BUT AFTER DINNER, I came to turn it back on and state my MIND ABOUT THIS BULL!!! I would LOVE to take ANY ONE of the people from the CDC, from the GOVERNMENT, FROM JUST PLAIN OLD OFF THE STREET folks, AND ALLOW THEM TO HAVE ALL OF MY OWN PAIN, PLUS MANY others PAIN for just ONE WEEK, WITHOUT MEDICATIONS!!!! I don't care how much you "punish" those who need the meds, and there is NOTHING ELSE that helps, THEY WILL FIND SOME WAY, SOME HOW TO GET "HIGH"... whether it is ALCOHOL, OFF THE STREET DRUGS, THAT LORD KNOWS WHAT IS IN THEM, INCLUDING HEROIN, Or anything else they can "use" to get what "WE" the NEED THE MEDS DO NOT GET AND THAT IS SOME KIND OF "HIGH" from them! Other than when I was in my teens and early 20's for sure, AND I COULD NOT GET RELIEF FROM ALMOST 2 OR 3 TIMES A WEEK SEVERE MIGRAINES, that SENT ME TO THE ER MORE TIMES THAN I CARE TO COUNT, and AT THAT TIME, for a while, I felt "something" that was kind of like giving someone an "I don't give a damned" drink, or medication that they may not take very often then YES, you may feel that "high" for a few moments, BUT those LIKE MYSELF, WHO HAVE MULTIPLE ILLNESSES, THAT CAUSE DAILY SOMETIMES SO SEVERE PAIN, THAT MEDICATIONS EVEN DO NOT GET RID OF IT ALL, WE DON'T OR I SHALL SAY I DON'T HAVE A "HIGH" FROM IT! I would GLADLY throw away ALL OF MY MEDS, If somewhere there was a "MIRACULOUS" CURE FOR lupus, RA, DDD, DJD, OSTEOPOROSIS CAUSED BY PREDNISONE, WHICH IS A NECESSARY EVIL, NOT AN OPIOIDS, BUT CAUSES MORE DAMAGE WHICH LED TO MY HIP FRACTURE.... If I could take NSAIDS, or anything else to relieve my pain, I would do it in a "New York minute"... BUT you TAKE AWAY PAIN MEDICATIONS FROM LEGITIMATE PATIENTS, and you will see MORE ALCOHOLISM, THOSE THAT CANNOT WORK, CANNOT TAKE CARE OF THEIR FAMILIES, ARE IN THE ER, HOSPITAL, AND TAKING ILLICIT MEDS THAT LORD KNOWS WHAT THEY CONTAIN... You will see a DRAMATIC RISE IN SUICIDES,, those that LIKE MYSELF, WITH A HEART PROBLEM, IF I WAS IN SO MUCH PAIN, WITHOUT MY MEDS, I WOULD PROBABLY NOT LIVE 6 MONTHS, THE REST OF MY BODY, INCLUDING MY HEART, would NOT be able to take the pain!!! It is a strain not just "where it hurts" but all over, and it effects you mind, the rest of your body and your soul, spirit and takes away all quality of life! One cannot raise their kids, work, or even there would be DAYS, WEEKS, MONTHS SOME WOULD BE COMPLETELY BEDRIDDEN, without RELIEF!!!!! I am SO SICK of BEING PUT IN A STEW POT, AND MIXED IN WITH THOSE WHO "CHOOSE TO ABUSE".... NOT ALL OF US ARE "ADDICTS... I don't take ANY of my medications, NONE FOR SOME KIND OF "ESCAPE OR HIGH" OR WHATEVER those that abuse get... IN FACT, I've NEVER HAD ILLICIT MEDICATIONS, other than at about the age of 23, I smoked a "bit of weed" and I HATED THE FEELING IT GAVE ME, same way with DRINKING ALCOHOL, I don't like the way I feel or that "loss of control" it causes... of course many of us as younger crowds years ago, may have drank too much, or experimented with "not legal things" yet most of my generation did not even know about "illegal drugs" in high school. It was not something MANY OF US HEARD ABOUT OR ESPECIALLY HAD ANYWAY WE WERE AROUND THAT TYPE OF THING".... I fully intend, on when I "SETTLE DOWN" TO GIVE THE CDC, THE GOVERNMENT, BOTH STATE AND FEDERAL, and ANYONE ELSE, a "PIECE OF MY MIND" ABOUT this bull.... you take a couple of states, with doctors who are NOT real doctors, or have "backwards" folks that use everything else also WITH prescriptions, and they with or without those meds would either wind up in the ER overdosed, or would find a way to get what they want, off the internet. or cross borders, IF THEY CHOOSE THAT LIFE, THEN NOTHING ANY ONE ELSE DOES WILL STOP THEM! I AGREE with 'regulation" somewhat, but most CREDIBLE DOCTORS, will NOT cause "harm" to their patients! By any type of medication, etc.... so yes kick out the "bad seeds" but leave those who truly are chronically in daily pain (HELL they were even stating some "SEVERE CANCER PATIENTS" MAY NOT NEED PAIN MEDICATIONS! ... WELL, some may NOT, but I would 'ASSUME" many would never go through chemo, radiation, and continue to want to live if their disease brought them intense, severe, and daily pain!!!!! I am sorry if I OFFEND ANYONE" But I am really perturbed on this subject!

Kratom??? Have YOU heard of it? Used it? Know more about it.

Kratom, it was shown to me by a friend on Facebook, 

 

that swears by it. She said it has totally changed her life, and given her freedom from Chronic Pain, and many of the horrible effects of other medications, she has been able to either cut down on or stop.

There are several "strains" of this "herb"... that is derived from a leaf on plants found in

"Kratom is a plant that takes its origin from several countries belonging to the Southeast Asia. Also, known as Mitragyna speciosa, it is a traditional remedy in Thailand and other nearby countries for several ailments"


The strains are different, and some are used for anxiety, others for pain, stress, to be even a "pep"pill, and give you energy.... each one seems to do something different, and it depends on the type, and how much used for whatever ailment you may deal with...


So, here are a couple of links below and I would LOVE TO HEAR FROM YOU!

IF YOU HAVE SEEN THIS PRODUCT, USED IT, KNOW MORE ABOUT IT, PRO'S OR CON'S I REALLY WANTED TO GET INFORMATION FROM THOSE WHO HAVE EXPERIENCED IT!

 THESE ARE just a few links and there are many more, and many about the different "strains" and what they are used for....

KRATOM

http://kratomonline.org/maeng-da-kratom/

http://kratomguides.com/positive-negative-effects-kratom/

 

http://www.phytoextractum.com/buy-maeng-da-thai-kratom-capsules

http://www.mitragyna.com/effects

I've been NOMINATED FOR A WEGO HEALTH AWARD for 2017!! Patient Health Hero Award! Please visit my page!

I JUST FOUND OUT I'VE BEEN NOMINATED FOR A WEGO HEALTH AWARD THIS YEAR!!!

 

 

MY PROFILE PAGE IS AT:   https://awards.wegohealth.com/nominees/1998

AND IT IS FOR "PATIENT HEALTH LEADER"!!!!

This is truly a WONDERFUL HONOR!!!!!

 

 

Fourth of July Already here, Time flies by too quickly, Cervical neck ongoing getting well over surgery, lumbat/sacral surgery, osteoporosis,bursitis.RA,osteoarthritis, and living....

SUNDAY ALREADY! SEEMS IMPOSSIBLE HOW THE DAYS, WEEKS AND MONTHS ARE FLYING BY SO QUICKLY. I am so "bored" with everything. I did put up my window "cling" that looks like stained glass. I love it, found it when I first moved into this house and put it on my front windows. It has been there about 10 years or really I guess more like 11 years, and it still looks awesome. So, I decided to put it on more windows, especially those that face where the sun comes in especially in the evenings. It looks wonderful and comes off easily, never fades, and does look like stained glass. I have 3 brand new mini blinds, that I've had for weeks for the office. One of mine was just about to come to pieces so I ordered all three new, so they would be the same. The others were old and getting to where even trying to wash them would be nuts. 

The less expensive ones are much to difficult to try and wash, and it is less hassle and cheaper to just buy new ones, since these have probably also been here 10 years or more. Right now after the rain from day before, and the cloudy weather over the past several days everything is so wet, between rain and dew, it's hard to get outside. I thought about going over to the walkway the city built buy one of the small lakes, not far from me... I broke down and bought new athletic shoes, Sketchers, a couple of weeks ago to walk in. I have some but they were really not enough support to walk very far in, so I broke down and bought better ones since I really need to be walking as much as possible. But, my street is so damned bumpy, and narrow, it's difficult to walk down it, and not get ran over. 

People run the stop sign right here at my corner one house down from me, and it's a wonder someone has not killed someone as fast as they drive down this street, especially with the kids out of school and the ones on their bikes, that are too young to really be riding out there with no parent supervision, but I see it all the time. A week or go, I looked outside and one little girl, about maybe 8 to 10 was riding right down the middle of my front lawn!!!! I was so pissed, and stepped out and told her I had better not see her, nor any of her friends riding through my lawn again! Parents don't watch and don't care, they just let them do as they please. It was so rude, and I told her, don't you know it's rude to go through someone's yard without permission? She just stared at me, and finally rode off. 

Anyway, I am not sure about the whole hip and thigh pain. I am thinking now since "both" hips have pain in them, and almost in the same spot, my left one I can trace the pain in it... and I think I may have either bursitis in both of them (which I have had before I broke the right hip) and have had them injected before, a couple of times. In fact about 4 years ago, I did have severe pain with both of them, and my orthopedic surgeon at that time, did inject the both of them at the same time. A bit later, my new Orthopedic surgeon, who does my neck, and did my right shoulder replacement told me it is my lower back making my hips hurt, and L-5 and S-1 and bursitis may or may not be the problem. I surely don't look forward to any other spinal surgery, especially lower spinal surgery, since so many horror stories come out of back surgery. 

But they have improved their process, the way the do the surgery, and what they have including "artificial discs" they can put in place of discs that have ruptured. That is what they did with my neck in the first surgery. One of the levels, he put a disc in place. The other are "fused" with cage and chips of bone from the bone spurs I had, rather than using artificial materials, or donor bone, they try and use your own, even if they remove it from a hip. I read they can do that, but with me having such severe osteoporosis, I imagine they don't take a chance of getting bone from any place else on me. Of course after the fracture to the right one, they would not touch it, but my issue is after reading, I am wondering down the line if I may have to have a total hip replacement, where he repaired it with the gamma nail and screws. I've read and that maybe what is already happening, that hip is developing arthritis in it, after the fractures and repair. 

So, between bursitis, which can even be "infectious" where they have to drain it, and probable arthritis, that could be what is causing pain in the right one, and my left one maybe effected by either osteoarthritis, or even the RA, which is what my 1st cousin had, RA that caused him to have finally both hips totally replaced. I've been trying to keep up and keep busy, but when you cannot or should not do things where you have to hold anything over your head heavy, etc, it's difficult to find things to do.... after having my neck in the brace for so long, I have come to realize how much you do that effects you having to move your neck up, down, sideways, and every which way, from driving, to putting up these blinds, to even sitting at the computer, potting plants, and even laundry, cooking, cleaning... you name it, even taking a shower, or like me wanting to have my hair cut, she usually has to have me bend my head forward to get it short and cropped in the back, but I need it cut so badly, so I may have to have her improvise, cut it and just do as much as she can without me having to bend my head forward etc... I don't think I can go another week with it as crappy as it looks. 

Honestly, I've almost thought about "razoring" the top and sides myself. I do usually when it is cut very short, and she razors it. So, I've thought about using mine and just get the horrible ends off of it, until I can see her. I just don't want to "chop" on it too much and then she can't cut it like I want. I let it grow out again longer, but now with it so hot, I like it really cut short... where I can put my "goo" on it, spike it up and go... no brushing, hardly no blow drying it, by the time I wash it, towel it off, and run my fingers through it, it's dry and I can put my "goo" in it and go.... no fuss no muss... I love it that way, and the way it is now, I am really better off doing it like that, especially if I am having more surgery in the next few months... I am really not sure what the hell I will do about my lower back... when it gives me so much hell, and I am in so much pain, I want to sit in the floor and scream, cry, and feel as if I am going insane, I want it "fixed"... but the idea of a lower brace, probably much more "time healing, and getting it well enough to do things," then I want to "back off" no pun intended, and say I will just put up with it... but I also know it won't get better over time... it will just get worse....

BOMBARDED BY INSANE SURGERY, DOCTOR & BONE STIMULATOR BILLS...What they heck do they think we have "millions"" This should really make you also upset, especially if you have any Chronic Illnesses...

Well, Urgent Care "does" have  radiologist that reads the Films, but since I came in with an "order" for it from another doctor, they don't send out a report, If I had asked them and went in for pain in my hip and thigh, I could have gotten the entire report. But, I think I can get into a Patient Portal where it should be logged in my records. Anyway, it is the same person at the hospital that reads them, and he had already read mine. So, I got her to tell me "basically" what it said... and she said it appeared there were "no loose" problems with the hardware... so I don't know if there is something else, but I do know that apparently the gamma nail and the screws are
intact....

yet there could be other things going on, like bone spurs, or bursitis, etc... and they may not have told me that.... I know I have signed up for their patient portal, but emailed because the usual user names I used none of those worked... anyway TODAY I GO TO THE MAILBOX" AND "ORTHOFIX" who are the ones that SENT ME THIS DEAL I WEAR 4 HOURS A DAY, EVERYDAY BECAUSE MY DOCTOR ORDERED IT DUE TO MY OSTEOPOROSIS, AND IT IS SUPPOSED TO HELP STIMULATE THE BONES AND HELP ALL OF THAT FUSE ..... well, they called me from the place "Orthofix" they told me my surgeon ordered it and they were FedExing it to me overnight.hey NEVER SAID ONE WORD ABOUT INSURANCE, COST ETC... OR IF I WOULD OWE ANYTHING, NOT ONE WORD... So, today the 'STATEMENT' COMES AND THAT DAMNED THING COSTS 5,000.00!!!!!!!  and MY PORTION IS OVER 600.00!!!!!

 I am so pissed about the entire ordeal, the surgeon charged me HIMSELF 78,000.000 and that was not the hospital etc... i knew I would owe him "more" than if he was "in network" but hell, my insurance only paid like 5,000.00 and they have to write off a certain portion, BUT HiS BILL IS 1,600.00  and yes you are reading that right... he charged MORE THAN THE HOSPITAL BILL WAS!!!! Anyway, I am SO PISSED.... JUST LIKE THIS ORDEAL OVER "OBAMA CARE" HOW TO THEY EXPECT ME ALONE, LIVING ON LESS THAN 20,000 A YEAR TO PAY OVER 6,000.00 ON TWO SURGERIES????? It's insane & I am seriously thinking about talking to one of the "news networks" in Dallas and tell my story.... it is freaking ridiculous....

I am upset, mad, hurt, and mostly just pissed, if I don't try to "negotiate" or pay these they will ruin my credit that took me over 10 years to get back in shape after my 2nd marriage..... it is totally greed... plus this this "cannot be used again" ... so if I did have to have surgery, and needed one, then it would have to GET ANOTHER ONE... after like 6 MONTHS, it is "gone out and it will be sitting here and cannot help me after this one surgery.......

Catching Up on Doctor Bills, talking about my surgeries, my hip "complications" with sudden pain in that thigh, my RA, Lupus, and all acting up due to the weather, and more...

Well, Peanut is much better. He is back to himself just about. I've been very, very careful as to what he eats, so he has been getting plain rice, potatoes, a bit of turkey and this morning he wanted "Cheerios" so I fed him a few at a time. I think it may have been some dog food I gave him early last week so it's going in the trash, and I am going to keep a close eye on him... fortunately he kept drinking water the entire time, so he didn't get dehydrated, but now is just hungry, so he is getting a little at a time.... gosh he had me so worried, we were going to the Vet Friday morning, but he had stopped being sick Thursday afternoon, and was kind of much better Friday morning, did not get sick, ate just a bit and was back to wanting to play some. 

So, I waited, and as the day went on he felt much much better, so I decided to give him the weekend, and so far, other than being tired, he didn't sleep much those couple of nights he was sick and neither did I... so both of us are warn out, then I had a horrible dream that I woke myself up, hollering and mad in the dream, but I was also actually loudly talking out loud, so I got up about 5AM and decided to just stay up and have coffee... I've been so damned "out of it" though ... I guess the weather being rainy and thunderstorms, then my body hurting all over., and almost was having an upset stomach also and feeling lousy, kind of like Peanut, but out Vet has posted that the dogs have also been coming down with the flu. Which is actually the same type of flu that humans can have. So, I was concerned that he may have had that, although he had not been anywhere to come in contact with it, but I could have came in contact with it, and possibly had it on me, and he got it. But, since he is well, and not showing any signs of being ill anymore, I think it was more something in one of the dog foods I gave him,.. bless his heart, he saw me crying and came up, got in my lap, and was licking the tears from my face... I was so scared... after losing Tazzy suddenly, then Bub's passing away while I was in the hospital with my broken hip, I was terrified I could lose him, and I would not survive I don't think if something happened to him.... the nurse from my insurance who comes every week once a week to check on me, her "weenie dog" will be having puppies in a couple of weeks. 

So, I am going to try possibly and get one of those. I think she would either let me have him, or won't charge me very much, and I will just take the puppy, get his or her shots and have it neutered or spayed myself.... Peanut needs his shots, but with my neck like it is, I can't really take him by myself, and get him in and out of the car etc... I've driven a couple of times, down the street to my grocery store, which is just about 5 blocks away, but I wear my soft collar driving, then put the hard collar on to go in, and I won't go alone if i need anything very heavy or if I need a larger amount.... if it is just a few items, then I go myself and just be extra cautious, and take a back route, where there is not a great deal of traffic....I've got to go this coming week and have my hip X-rayed... since my thigh and hip on that side where I fractured it has been hurting now for several weeks, my PCP gave me an order last week to go and get it X-rayed to rule out that one of the screws or something is out of place and causing the pain...

I can barely stand to walk on it some days... then it will get better, then get bad again.... I don't want to go over to my surgeon until I know whether something is wrong or not... he charges me a fortune, and the X-rays there are 5 times as expensive, so I can go even to Urgent Care to have the Xray done, much less expensive, and find out before going and spending a fortune when I am still paying for the surgeries. I thought I was about done paying his bill, then I get another one for the 2nd surgery with the hematoma... I thought it had already been in with my bill, and I've paid at least 700.00 or more to the surgeon alone, then find out i may owe another 240.00 or more dammit.... And the neck surgeon, I owe him 1,600.00!!!! and that is just the doctor, the hospital was less, 

I paid my outpatient co-payment, but my surgeon is "out of network" so I have to pay more for his bill, than if He was "in network"... but I don't trust anyone else, so I bite the bullet and pay more.... go figure... I dread to see what the hell the government does with Medicare...I hope leave it the hell alone.... I already pay more than I can afford for any type of surgery especially.....

That 5 days in the hospital in December for my fractured hip was over 1,600.00 and then another 325.00 for the outpatient hematoma surgery, which I should have not had to pay for, since it was a damned complication of the initial surgery, that should have been "caught" weeks before when I first said it was "developing" I noticed the lump getting larger on my leg, like 3 weeks BEFORE MY FOLLOW UP VISIT, and he still just asked the nurses to "take a photo" and email it to him.... well it only got worse over those two next weeks, and I kept complaining but he still did not see me until it was the size of a SOFTBALL!!! It should have been looked at and dealt with as soon as I began noticing it..... goes to prove sometimes our doctors "ignore" what is right in front of their faces....