"A Way To Provide Help and Hope for you and for others with AAI illnesses and other AI diseases also "
I received a new "Clinical Trial" email yesterday with the current list of Clinical trials you can search through to find that some may be a fit for your illnesses, along with where those are located, what they involve, and to see if you may qualify for one.
These can lead to helping not only the patients who get involved but sometimes leads to helping many others because someone stepped up to the "plate" and decided to do one of these.
You can either "join" for free, or just do a "search" with key words, and then the closeness to your location in miles or zip code.
Here is the URL:
I recently spoke with a gentleman that happened to have Lupus. We met at a meeting, and when I was telling someone about my own experiences with "prednisone" he asked "Do you have Lupus?" Of course I said yes, along with several other autoimmune arthritic illnesses. We got to speak that evening for a long while and it is amazing the people that seem to be put right into your life just when you least expect it. He had been originally from the Houston TX area. He had participated in a clinical trial and talked with me about it.
He said he had a good experience with the one he participated in. I had wished that someone could have pointed me in the direction of these trials when I was first diagnosed, or barely diagnosed with one of several AI illnesses I have, so I may have been able to STOP or slow down some of the damage that is now too late as far as medication wise now. So, my own experience led me to surgery on several joints, and replacements on three large joints, and a 4 level cervical fusion, discectomy & two artificial discs replaced two of the severely damaged ones.
My own Rheumatologist in fact does research, and also teaches, plus still sees some of his patients. He had talked about a project "one of the clinical trials" that were putting together, and then I found out the place he teaches and does research at in Dallas, is also very well known for all of their clinical trials.
As for myself, before I had found a "great" Rheumatologist (who I thought I might lose in fact to his research and teaching), fortunately I didn't, by the time I really got to know about all of these "trials" I was in a good spot with medications, doctors, tests, labs and so on.
So, rather than let other people get under the radar and not be able to possibly enroll in a clinical trial, I try to make sure and put the URL up when they send me a current list via email. There are absolutely so MANY of them going on, and if you are fairly near a big city, I almost guarantee you can find something that may be of help to you.
Of course there are "trials" on ALL types of illnesses, but when you search for RA, Lupus, Sjogren's, MCTD. UCTD, JA, Still's Disease, Ankylosing Spondylitis, Psoriatic Arthritis, you certainly will find an entire host of trials for those illnesses.
Of course there are so many other Autoimmune Illnesses such as Multiple Sclerosis, and that list is into the hundred's that I am sure there are plenty of trials to go around for many.
It can be a way as I said of helping your own situation, possibly others also, and make way for hopefully a quicker and accurate diagnosis, more medications, possibly more ways to put these illnesses into remission, stop them before they begin, or possibly CURE those that are now suffering from them.