Showing posts with label dementia. Show all posts
Showing posts with label dementia. Show all posts

Tuesday, March 22, 2016

DOES IT EVER END????

Now as if things are not screwed up enough!!!! MOM TOOK ALL HE MEDICATION MORNING MEDICATIONS THAT WERE SUPPOSED TO BE THROUGH FRIDAY! all of them already! THEN ONLY TOOK "PARTS" OF THE BEDTIME MEDS... WHEN I asked her why she just looked at me and said well it is so simple I really do not know why I can't "get it"????? Then she DID NOT TELL ME that her legs and ankles were VERY SWOLLEN... now this is since Sunday - well she did NOT take her LASIX all week last week, because she did not take ANY meds last week... and SHE said Well they were "worse" they are better now... BULL, SHE is playing with "fire"... the entire reason for being SO CAREFUL about swelling is TOO much FLUID can cause that "heart valve" to act up and then she is facing open HEART SURGERY!!! So, I MADE HER TAKE ANOTHER LASIX and watched her and then increased it over the next 5 days to 2 every other day, which is what her heart doctor wanted her to do in the 1st place!!!!! 

Then "THEY ARE BACK!!!!!!!!!!!" I was in the back yard a few days ago, and in the back forty lot over some of the "weeds" I saw lots of what I thought were those damned "May Flies" which I hate swarming... BUT NO, THANK goodness I went back today and looked, because earlier I was out there with the weed eater trying to knock down some of the tall weeks before the city freaks and wants me to pay to have someone come and mow it with a tractor... 

BUT I stopped and decided I had enough room to spray weed killer as usual and should knock it down enough, it is all weeds and no grass... BUT, I LOOKED BACK AT THAT OLD BUS again a bit later AND IT'S THOSE DAMNED HONEY BEES!!!! WE "RAN" THEM OFF WE THOUGHT' They built in the neighbors walls... and he almost never got rid of them and NOW THEY BUILT OR ARE BUILDING BACK IN THE DAMNED OLD PIECE OF BUS ON MY BACK FORTY!!! I have been wanting to get someone to haul it and a bunch of old dead trees and tree limbs out, but finding the money is not easy... SO CRAP I have to do something... I just hope I can find someone who will come and "move that damned hive".... what a mess... 

Bub's is better, and I still never "found" what bit or stung him, and he is still not all the way over it, but all of it is looking much better, and I can tell he feels much better... what a damned nightmare... I do not honestly know what to do about Mom... and then I find out something about my car lease that I am really pissed about, but I will "save" that story until I do some research..... anyway, things suck even worse, and I am worn out.... and sick and tired of it all..... does it ever end!!!????

Friday, March 11, 2016

Dealing with Eldery Parents who have Alzheimer's or Dementia, when you, yourself are dealing with Chronic Pain and Illness...

 posted this on my FB page, and I will put it here also... I will be doing some work on my blog, my book, my new newspaper I have began, as well as some other things around my home, and some thinking about life... and how to deal with some really tough issues.... I maybe "away" from FB for a couple of days. 


There are some things I really need to get to working on as far as this new newspaper I am staring. I can customize is a great deal and it could really help me with my blog, as well as with my books , and my next book...plus lots of my advocacy work...getting information out there that would really benefit many people and help make what I want to happen possible ( I Hope)...I have also had some new ideas for my 3rd book unfold in my mind over this past couple of weeks, and although I jotted some of it down, I would like to start writing on it, in the beginnings of the book itself.... There are also some "personal matters" that honestly came up this morning, mainly to do with all of this mess with my Mother, and at this moment I am totally at my wits end, I have no clue where to go or what to do, other than leave her alone, and allow her to figure out "all is NOT RIGHT in her world".... she really hurt me earlier... calls me well before she is usually even out of bed, wanting to know "why I had not called or been by"...

well for one I was there two days in a row, just yesterday for one, and besides she is usually never even out of bed until after noon time... anyway, she asked me what I was doing, and then she told me I was a "blabber mouth", and I should NOT be telling my own kids what is going on... well I tried to tell her the kids are NOT stupid, and they "hear and see" and then she says they are never here nor never call so how do they know anything? So, I hung up... well I called back about 30 minutes later, and began to tell her to NEVER call me a "blabber mouth" again... that it for one hurt my feelings, and for two was NOT the truth, so then she began to tell me that losing her credit cards, not being able to work her stove, put her car in gear, not pay a bill correctly, not take her meds correctly, not know why the alarm clock blinked etc "meant nothing" and why do I even "care"... it is in the past... 

and when I said MOM jut yesterday I WENT TO GET YOUR MEDS AND GO TO THE STORE BECAUSE YOU DID NOT FEEL LIKE IT... so it not in the PAST it is right now... and she made some snide remark oh well, when we get there or if we do, we will handle it then... well WE ARE THERE! And she cannot continue to live alone, and if I tell the doctors about the car incident and and a couple of other things, they will tell her she cannot drive NOT live alone! As I told her and "building you a room" takes more than a few days.... she began to tell me I was full of crap, and nothing was wrong with her.... so I hung up with Okay, I will not "bother" you again, I am NOT calling, I will NOT come over there, and "if" you need me, then call, otherwise, I refuse to be hurt and used like a doormat and then laughed at when I told her that her calling me a "blabber mouth" hurt my feelings... and she said "she never even called me this morning"..... 

so, I have LOTS of things I want to do and get done, and I honestly right now am so totally sick and tired of this crap.... that she may wind up in a nursing home, if she does not want to listen to me.... I don't know what else to do.... but I need to get some rest myself, and do some thinking about several things... so if you do not see me here much, I am okay, just "out of touch" for a few days....

Thursday, March 10, 2016

I NEED HELP as Soon As Possible - I need an additional room built onto the back of my home for my Mom

ANYONE KNOW A BUILDER/CONTRACTOR IN THE ELLIS COUNTY AREA OF TEXAS WHO IS REPUTABLE AND CAN GET THE JOB DONE IN A TIMELY MANNER AND GIVE ME A FREE ESTIMATE????



Many of you may have already read my posts about Mom and how rapidly she is regressing into what I feel is dementia or Alzheimer's. Over the past couple of weeks the situation has turned grave and dangerous... too dangerous for her to stay alone much longer... so I need to build a room for her on the back of my house... see my post below...


Anyone that maybe close to my area in the Ellis County area, or near, that may know of someone that can "build on" a room for my Mom onto my home, along with doing some finishing work on my own home, as soon as possible, please contact me by private message. If you have an idea of someone that can do a great job, at a decent price, give me a free estimate, and will get it done as soon as possible would be so appreciated. My Mom cannot stay in her home much longer alone. Even though I am there everyday, or call if I cannot go over and she is only blocks away, things are rapidly getting too bad for her to stay alone... after all I saw and went through yesterday, something has to go be done and done quickly, Rhia

Thursday, February 25, 2016

Eldery parents,caretakers,your own illnesses,surgery,family matters, Humana and insurance,doctors offices and issues, and more...

 Life is not always  BED OF ROSES... but I would settle for a few soft petals for now...




I am so excited - My NEW CORDLESS Weed Eater Came in yesterday! No more trying to pull those heavy cords around the yard, and I can take this out into the "back forty" also. Plus it is really almost lighter in weight than the corded one, and certainly lighter than the "gas" one. I can't weed eat for any long length of time, but I did discover, as long as I take it slow, and take breaks fairly quickly in between, then I can do lots with it. I can't start my darned lawnmower, because I do not have enough strength in my arms anymore to pull it quickly enough for it to start. It sucks, because I just put almost everything new on it last summer. I put the new pull cord device on it, a new air filter, changed the oil, a new spark plug, and fixed the "baffle" on it that deflects the grass. So, I am hoping my neighbor who used to mow the lawn will still do so, and he can see if i did a good job in the "overhaul" I guess when it plays out on me, I may have to get one that is "push button" for starting or something. I no longer can pull the cord quickly enough to start those kind. Anyway, right now I hope "nothing else" breaks or needs replacing around here. 

I've got the surgery to pay for, a doctors visit tomorrow that will have to be paid in full right now by me... he is my PCP and the ONLY doctor NOT on my "preferred provider list"... Hopefully since Aetna bought Humana, (they are on Aetna's plan) finally it will come together and they also will be on Humana's also... it is so odd, Humana used to carry them as a preferred provider for years.... anyway, I am having HELL with the surgeon's assistant that is doing my neck surgery. I go through hell with them on insurance every time... I FOUND THEM AND CALLED NOW 3 TIMES to make sure his clinic is on the "preferred provider list"... and I have seen it and they told me AGAIN ON THE PHONE YESTERDAY, that they are on Humana's "preferred providers list".... BUT the doctors office said the insurance said that they are not... well the issue is they have it listed under their "clinic name" which Humana tells me that means "the doctor" is covered... and I even got a special number on the phone yesterday as a confirmation that he is a preferred provider that I faxed to the doctors office... anyway, I have a 750.00 deductible on any "non preferred" provider then the insurance will pay 60% of the bill anyway, and then I pay 40%... so if it comes down to it, once that 750 is met, I would owe 40% of whatever, office visits, etc... and sometimes that 40% is actually "cheaper" than the co-pay which now is 20.00 for a PCP and a specialist is 45.00 in co-pay.... anyway, between that, trying to get Mom all figured out as far as her medications, and so forth, making sure I have someone to get me back and forth to the surgery next week on my neck and I think my son will be able to, he has to check with his work, then I will be in a neck brace for about 4 to 6 weeks...

 I will be able to drive after a week or so, but being in that neck brace makes it a bit more difficult, plus my pain pump has to be refilled around the 18th or so.... gosh always something... I won't be able to bend over, so I will have to get "creative" in changing the dogs paper and feeding/watering them... the little one is so full of "pee and vinegar" as the old saying goes, LOL, I will have to be extra careful with him after surgery so he does not trip me, or make me do something to "injure" my neck for the first couple of weeks... anyway we have all of that going on, and some others things, with family going on... I think all of us are more stressed out than we can almost handle... keep your thoughts and prayers with all of us right now.... I know my family will appreciate it for sure... 


My daughter and her family are under a great amount of stress due to jobs issues... things are so up in the air with the oil and has industry, and her husband, my son-in-law has worked with that type of thing now for over 10 years... yet with the extreme drop in oil and gas prices, of course it is taking a toll on so many of the companies that have anything to do with oil and gas right now... It is wonderful for us when we go to the gas station, but a nightmare for so many who may lose their jobs, and so forth. Talk about a double edged sword... so I have her and her family in my heart and am concerned for them, as I know this is a difficult time for them also. He does not really know from one day to the next if he will have a job with the company or not, and after having that security, benefits, insurance and so forth for over 10 years, that is difficult to deal with.


Saturday, February 13, 2016

Dealing with an Elderly Parent who also appears to have either Demenia or Alzheimer's when YOU are in Chronic Pain and have Chronic Illnesses.....

I took my Mom, (we have not been in almost a year due to both her and I being ill, so this was supposed to be an incredible trip!

Mom has been showing so MANY signs of either Dementia or Alzheimer's now for 2 years or so to me. Yet, the last 6 months have gotten terrible. I could write a book on just what I have been through due to her "diminishing" ability to "think, not be confused, not to almost burn the house down, to not be able to pay her bills, or even read her mail" and the list goes on and on... and remember I AM ALONE NOW, I AM CHRONICALLY ILL WITH SEVERAL AUTOIMMUNE ILLNESSES MYSELF, AND LIVE WITH HORRIBLE CHRONIC PAIN... so to have to also deal with some of these things with her some days is more than I can handle almost...

So, this is a bit about our overnight trip to the Casino at Winstar in OK....

(From Friday evening after getting home)
TOO WORN OUT, TO EXPLAIN all the HELL at the Casino the past two days, but yesterday ALL OF THE MACHINES WERE DOWN MOST OF THE DAY! TODAY MOM LOST ANOTHER credit card! I JUST HAD TO CALL ONE IN LAST WEEK SHE LOST here in town. So, today, she "discovers" she lost another one! Then she misplaced her cane about 10 TIMES at least... other than that, and HORRID nightmare traffic going especially but coming back also ROAD CONSTRUCTION EVERYWHERE!!! But, other that those things all in all, it was a GOOD TWO DAYS!!!! LOL!!! Oh and my kitchen was still standing when I got home. LOL... The pups were in the kitchen with their quilts, food, blankets, toys, water, etc... and actually I still had a house standing.... LOL!!!! More over the weekend, I am totally wiped OUT! But, I came home with only 20.00 LESS THAN what I went with... so I guess that is a good thing .....

(Today Saturday morning I continue)  .......
Those issues, and that we had not really gotten to play much at all on Thursday, (can you imagine how much money the Casino lost?) Their "main server" went down for some weird reason that does everything for all of the slot machines! In fact I sat down and played, and was going to switch machines, and it would not print me a ticket with my money on it... so then I began to notice ALL of the machines were "blinking" and people we saying the same thing I did!!!! So they really had one heck of a mess. And of course the day we decide to go of all times!!!!! I am so totally worn out today thought... Mom "lost" can her cane 5 times. Once I had to go and ask about it. And "lost and found" brought it to me, someone had turned it in... the other times "I" finally found it, once she could try and recall which machines she had been at. It was a nightmare... then when she found out her credit card was GONE... I just went nuts almost. Thank Goodness it was a "credit" card and not a debit card for her checking account. They may have been much worse. I had to get home first, find an old statement of hers, so I could even find where to call to cancel it... and then bring her information home and call them. Then she could not decide to eat at the Casino (we did not eat breakfast at first like usual) and just played thinking we would play an hour or two, then eat and leave. This was like 6:30AM or so... so by about 10AM, even I started getting hungry. The night before she would not even eat down in the Casino like we usually do. She wanted to get something and take it to the room... which was fine with me, but just weird. We went up "early" about 7:00PM to the room, and had gotten some really good fish and fries, much, much more than either of us could eat... we should have ordered just one and split it. So, I turned on the TV and was watching a movie... the next thing I know she is in the bed, with the extra blanket, already asleep by about 8:30PM or so. I could not believe it, and she never woke up at all, and usually she is up and down several times a night.. I finally decided to lay down also, so I changed and got in bed, and I woke up by 5AM on Friday and HOPED the slot machines were okay... But. I was already drinking a cup of coffee, I had made their in the room (which sucks) but I needed something... and was almost dressed by the time she was up moving, ready and packing. Like I said it was just strange everything she did. Heck, when we were going to the Casino, she sat and spent like an hour almost going back and forth through her purse. I thought maybe she lost something... but she was just "confused" I think about everything... then she kept saying we should be there already, and I said YES, if we had not been in stop and go traffic for about 35 or 40 miles or more off and on, we would have been there in about 2 hours... it took almost 3 and a half or more hours to just get there this time! Anyway, I parked and again she began going through her purse, and taking stuff in and out... and I finally asked her Mom have you forgotten something? She just said I cannot get it all organized, and then she had her "Players club card" in her hand, or lap and started saying she "lost it"... I looked down and said Mom it is right there in your lap..... anyway, I knew then it was not going to be a incredibly exciting trip... and one time about 2PM on Thursday, I told her to "SIT" and do NOT move from a certain spot... I was headed to get some tea, and go to the restroom, which was a long ways down, and then I told her I was going to try and check in to the room... so DO NOT MOVE! I get back and she is GONE! So, I thought gosh knows where the hell she is now... so I started looking, and finally spotted her rambling around, and I said WHY DID you MOVE??? She said well you were taking a long time... and I said I TOLD YOU, it is a MILE almost to walk from where we were to the HOTEL to check in! So, yes by the time I got there, got something to drink and went to the restroom it took a while, but why the hell you did not STAY where i said to... and she just looked at me... LOL! Anyway, it was okay and I had a wonderful time JUST BEING AWAY FOR A DAY OR SO AND A NIGHT, from the house, dogs, and just "Life".. BUT, I FEEL Mom will not be going back there again... if we do go to one, we may have to go to one of the smaller ones, who has already grown huge also... but she even said it, I just don't think I can go through this again, OR put YOU through all of it... and I told her Mom, it is fine, I did not mind and We BOTH needed to be away for a day and night... I told her I have my OFF days also... BUT now she really sees what I have been seeing for several years, and really bad the past 6 months... she goes to our PCP on the 22nd, and I am going to have a huge discussion with him... this is not just "old age", this is definitely more than that... I just PRAY it is not Alzheimer's.... Dementia is severe and bad enough, but the other, I watched my Grandfather go through that, and I surely do NOT want anyone to have to deal with Alzheimer's it is a horrid illness for sure..

Wednesday, January 27, 2016

Hallucination, Premontion, Trying to Help My Mom Understand an ODD Happening... sometimes we just do not totally understand odd things....

Okay, I have a very odd situation going on with my Mom. I called her yesterday evening about 7PM or so, and she was crying. It scared me to death, thinking something was really very wrong, and then I was upset she had not called me. So, she starts out telling me that my (sister in law) Madeline, who has not spoken to any of us since my Dads funeral in 2005. My step brother Larry, and her were at the funeral home I guess they day they were picking out the casket, and so forth. I had not made it in yet from Seattle, so I was not there to know what happened exactly. 

But, from what Mom said, Madeline (who honestly always acted like we were trash, and not good enough since we did not live in a huge fine fancy home and so forth) is was born and raised in England, and had a little girl Karen who was just about 3 years younger than me. 

Anyway, I could make that a long story, but anyway, something came up at the funeral that Larry asked my Mom about some (insurance policy) that I guess my Dad had many, many years back, and he had probably used it for his burial, so it was no longer there. But Madeline must have stuck her nose in the middle of it, and began asking I guess about that policy, the money on it, and felt it (belonged) I guess to Larry and her! Well, Mom was already in a state of shock, as to how my Dad died so suddenly from a knee replacement that went very wrong... and to this day we are not really sure exactly what happened to cause him to die... but after whatever words transpired, Larry and her would NOT speak to ANY OF US! 

Not Mom, not my two kids who were there, and NOT ME! And I had nothing to do with this, and did not even know it had happened.. so I was totally in the dark as to why they ignored me at Dads funeral, and then at the meal afterwards... and finally I was told that there had been words at the funeral home, before I even arrived.... well, I only know what I have been told... BUT they have not TALKED TO ANY OF US, NOT CALLED, NOT CAME BY TO CHECK ON MOM... AND she helped to raise Larry, as a teenager, and then he stayed at the house even after I was born, and he was there until I was about 4, then he enlisted into the Air Force... he was stationed in England a couple of different times, thus that is where he met his wife Madeline, and finally adopted Karen the daughter... Okay so there is the background a bit... so night before last, Mom said she was in bed, but just got in the bed and was fully awake, and she heard footsteps coming down the hall. Madeline always wore high heels, no matter what, and always was dressed to the (Nines) when they visited, which she rarely would come... anyway, Mom said she sat up, and Madeline was standing at the bedroom doorway, dressed in black, and she is already tall, and in heels she was very tall... and that she began to ask my Mom (Henri (Moms full name is Henrietta, can I come and stay with you?) 

Mom said her voice sounded extremely distraught, and that Mom even tried to speak to her... now at the time I thought Madeline REALLY came there, from how Mom put this to me... so I even asked, how did she get in the house, did you leave a door unlocked, because with screens and doors locked, no way anyone could get in... and then Mom began to tell me, she never said anything, else, and after about 10 minutes, suddenly vanished.... om put this to me... so I even asked, how did she get in the house, did you leave a door unlocked, because with screens and doors locked, no way anyone could get in... and then Mom began to tell me, she never said anything, else, and after about 10 minutes, suddenly vanished.... Now my Mom, along with myself, and both of my kids, have always had this (6th sense) or whatever you want to call it, about knowing when something is wrong, or having a feeling, or I have vivid dreams... in fact I have very bad night terrors, they are better now, but had been very very upsetting... anyway, Mom did not really recall the whole thing until yesterday evening, and then she began thinking about what had happened and was extremely upset that something (bad) had happened, or was going to... 

I finally figured out this was some type of hallucination, or some kind of dream state, but Mom insisted she was wide awake... but it truly upset her, yet she did not call me... and she said i am not even sure why I did not call you... I was so worried.... Anyway, I tried not to make more of this with Mom, not wanting to make her more upset over it, especially late in the evening... so I have been trying to do some research today, to find out about hallucinations, something this vivid, because of course I had been concerned Mom has signs of Dementia or Alzheimers, in which I know for a fact in some cases they have delusions, or Hallucinations, and so forth... but I also have tried to find my step brothers phone number, email or something, so maybe I need to call them... what I did tell Mom is often whatever it appeared to be about, may not be something bad... as I told her, since it was at Dads Funeral 10 years ago, almost 11, that maybe why she was dressed in black, and possibly they are talking about trying to reconcile the situation, knowing they acted stupid, and should have never (cut) any of us out of their lives... so maybe it was a message of almost apology... or that it could mean anything or nothing... it just happened and that is that... 

BUT, I know Mom is still concerned, so I am not sure just how to handle this... she was much better after talking to me about it last night... so I know just telling it helped her to better understand, that it can happen and not mean a thing... yet these things can means physical issues... when I ran such a high fever last time with double pneumonia, I was Hallucinating in the broad daylight, walking around my home talking and hearing voices, that were not here, thus I finally thought to take my temperature, and it was 103... thus was causing me to have hallucinations... she has not been well, she is in pain still some with her back, she is already upset over lots of things, her nutritional level is not good and she is lacking in several vitamins, after all of the weight loss.... so even just the stress of all of that could have something to do with it.... anyway, any of you have any ideas, or suggestions? I would appreciate another point of view... LOL, I will say it kind of (freaked) me out and then I felt odd last night before I finally went to sleep....

Saturday, November 21, 2015

More about Wound Care Specialists, Severe Pain that is driving me about insane, too much to do, Mom and what I fear is dementia or Alzheimer's & as always more.....

At this moment my Mother does not know just how upset I am with her. But, I totally intend to tell her today! After she had the issues with her stomach, and some intestinal issues, she lost some weight, because she just would NOT eat! I mean she went for DAYS and would barely eat or drink anything! I took Ensure over there, took everything I could think of, suggested everything I could possibly suggest, and finally took her to our PCP who put her on medication to "increase" her appetite, and some new medication they are using for chronic constipation, especially from certain medications. She has a lumbar spine issue, and had been on NSAID's. That has been going on for months, and the pain specialist even gave her Norco to take every 6 hours when needed. Which at first she refused to take, until the NSAID"S caused kidney output issues, that sent her to a Nephrologist, who took her off NSAID's (which our PCP has already done) and cut back her Lasix some temporarily until she had a kidney sonogram, which has been done last week, and more blood work on Monday next week. Then she follows up with him the first week in December. I feel things will return to normal. I feel it was the generic Celebrex that caused the issues, and now her kidney functions should be fine. But, he made the mistake of coming out and telling her she maybe facing Level 4 "kidney output" which means one step away from dialysis... I had told this before, and how I reprimanded him for even mentioning that word to her before he even knew WHAT was causing the problem, and before he even read the chart from our PCP etc... I was so mad at him... but MOM will NOT ask questions, she will not speak, she just sits there, listens, and then leaves not understanding a word... and having 15 questions, she never asked, and expects ME to figure it out, explain it, and then even at that she is so totally confused, she does not even know "if" she takes her meds now, or "if" she is taking the proper meds at the right dose. I cannot say enough that I have explained, I have a typed out list, of what she takes, when, how much, what it is for, and which doc prescribed it, and she still cannot get it right... she blames the pharmacy but she goes in, takes her "bottles" rather than calling them in BEFORE SHE GOES... and expects them to have them ready immediately even if she has NO REFILLS! Then she gets mad when they cannot get them okayed by the doc right then! I have talked till I am blue in the face, and nothing goes into her thick skull. I spend more time going over there to explain medications, that she cannot get straight... and she will do NOTHING for herself anymore. She won't leave the house for days and days and days, because it's cold, well it is winter! And mu body hates cold weather, and I hurt, am stiff, without my pain pump, with two HOLES in my legs, and I have to MAKE myself, but I get up and move, rather than lay in bed and mope! I even had the doctor put her on antidepressants, she is so totally depressed, and she decided her "breathing" was not right. So, she went in to her cardiologist, that told her the leaky valve was in such good shape now, that she can't even "hear" the leak! She also told her the shortness of breath, the weakness, the stiffness and pain is from having stomach issues, losing weight and muscle too quickly, not eating, and then now not exercising, walking, or something to improve her muscle tone, especially in her thighs... that is why she stays cold all the time, why she feels weak, and walks "slumped over forward"... and she just walks now "shuffling her feet" like she is almost what I see in people with very bad Alzheimer's.... So, Wednesday around noon or so, and had just gotten out of the shower, and my phone rings... my hair was not even dry yet, and she is "mad" again... she let the car sit there for well over a week, and did not even start it and let it run, so the battery was down AGAIN! And she was "out of everything to eat in the house"... so I told her I would finish getting ready, bring the battery charger over, put it on trickle charge and let it sit for a day or so, and I would take her to the store. Well, we get in there, and all she bought was paper towels, toliet paper and facial tissues! Barely anything to eat, but 3 pieces of "salami" she has sliced, and a small loaf of bread... and some already made bisquits and sausage to microwave! I was the one that really did not need much, mainly stuff to clean my dentures, BC powders, more large bandaid's... but I bought more groceries than she did... I bought a ham to put in the freezer, and several other food items... and we got to the front to check out, I looked at her and said, are you now eating paper towels? I thought you said you had nothing in the house to eat? Well, I know what she did... she decided NOT to buy what she really needed, because she was upset over the car not starting, and decided she would not buy all of what she needed at the time... which was totally stupid... here she was, did not even have to carry any of it in... I could help her, and griped the entire time about how heavy a 2 liter coke was, and how everything is too heavy to carry in... it took me only 5 years to finally convince her to use the reusable grocery bags... that are so much easier, hold stuff better, with handles, and you don't have 50 tiny plastic bags that hold nothing to try and deal with... anyway, I had already TOLD her at least FIVE TIMES that I had the appointment yesterday, in Duncanville, with the wound care specialist... and even though I had some idea what they would do, as far as debriding the abscesses... I was not totally sure, and had no clue how long I would be there etc... I never "asked" her to go, but she knew it was a new doctor, something I had never been through before, up in the Dallas area... etc... so even when I left her house Wed. afternoon again I reminded her of the appt the next day at 1PM in Duncanville... I could tell she was NOT going to offer to go... hell she did not even want to go to the grocery store, so I knew her not saying anything was her way of saying I don't want to go with you... but I called her about 11:30 yesterday morning. I was leaving at noon... to tell her I was leaving, and it maybe later that evening before I could take the charger off the car, or even today, Friday before I would get over... well, when I called SHE WAS STILL IN BED!!!! Again for over a week, she stays in bed until almost NOON! She never did that before! She was always up fairly early, may lay back down for a bit if it was too early, but she would get up, bake, do things around the house, and so forth.. she may sit for a time, but she was usually up and about for at least part of the day... now all she does it stay in bed and gripe because her back hurts so bad.. but will not take the pain meds as she can to help with the pain, and then will admit if she "gets up and stirs" around the pain is "better".... but yet, she was still in the bed after 11:30 in the morning... and then had the nerve to tell me, SHE DID NOT KNOW ABOUT THE APPT. she "thought" I was going back to the "surgeon" in Waxahachie!!!! She knew that was NOT true! I had told her when my PCP wanted me to go, what I was going to do and see, a wound care specialist, and she had been told numerous times it meant going to Dallas... so then I don't get home until after 4 yesterday afternoon... so I change, say hello to Bub's, and get things back in order and then call her to tell her, I was not going to mess with the battery thing until today... it was late, I was totally exhausted, and she did not need the car yesterday afternoon anyway... and again, she said, I think I have been "out of it"... I did not know you were going to Dallas, to this specialist... and I said YES, you are out of it, and YOU DID KNOW, because I told you a half dozen times, including Wednesday afternoon, again... that I had to go the next day and be there at 1PM.. and it was in Duncanville... and then she said something about sleeping so much, and again I told her that she is suffering from "disuse syndrome" and that staying in the bed and NOT DOING as her doctors have told her only makes her more weak, feel more pain, and worse health wise and mental wise... and then she said, "well I have nothing to do"... BULL, she is always able to find something to do around the house, she could have been up, dressed and went with me, and at least got out of the house, rather than sleep till noon, and then gripe because she is cooped up, cold, and weak, and in pain.... anyway, I just bit my tongue on the phone, but I totally intend on giving her a good talking to today when I go over... this is totally stupid... to all of a sudden lay down and decide to just give up and wallow around in your own self pity... anyway, I guess I should not post this here, but I am sick of her playing me and I spend more time messing with her stuff, and don't think I resent it, I moved back here to "help her".., BUT not everything... not all that she suddenly has decided she can't do... I already do enough almost daily for her, and the rest (she even decided it is too much trouble to go to church)... my Grandmother went to church everyday, without fail with her sister... so going to Mass on Sunday morning, certainly is not something she can't do anymore... that is just an excuse... okay... well enough griping and being disgusted with her attitude... I have my own stuff to do... I still have to try and see about this bracket on the ceiling fan, along with a billion other things I need to do... more later guys and gals....

More on Mom, pain, and wondering if I am LOSING MY MIND!
I saw it again yesterday... I "told her" 3 times about blood work she needs to have done "Monday"... and when I got up to leave, she said, I can go by myself "tomorrow" to have the blood work done... and we had JUST discussed it was "Friday"! I turned to her ad said, well if you think they are open on Saturday, I guess that would be fine.. and then I said "Mom, you can't even keep up with the days of the week, or what time it is, I am not sure you can go to have lab work done yourself... besides I had JUST ALSO TOLD HER that I had the ORDERS for it! Sometimes it is so frustrating also... because I just feel like I repeat and repeat and remind, and she still just does NOT get it. I walked in yesterday, and she was "looking" for something. I asked her what she was looking for, and she said you know the "stuff" for... and began to make a "circle" with her fingers... I said the "Meclazine" for vertigo... and she said yes, and I thought I had a whole new bottle.. I looked up and it was sitting on the kitchen cabinet... and I pointed and said hey, there it is right there... and she said I don't recall putting it there.... I did not know whether to feel badly, or be just plain mad... honestly... it gets very old... very quickly, and with my own health issues at this moment, and honestly my PAIN LEVEL EXCEEDS "10" at this time, and it about 80!!! if that was on the chart... everything on me hurts today... everything. and my pain meds did not come in yesterday, which concerns me, because the nurse at my docs office called Thursday afternoon and said she got them to the pharmacy... and they usually get those mailed out that same day, unless she did it very LATE in the day, as she does sometimes I think just to be an "arse" to put it bluntly.... so hopefully they will be here today, I will be out of the strongest ones by Monday morning, really Sunday night.. she always does that too, knowing that they come to me from a pharmacy in Dallas, she will cut it to the very last moment, and you pray you don't run out before your new script arrives... it is sometimes just frustrating... LOL... I guess I am a bit upset over everything today.... I have SO MUCH to do, and I hurt so badly, everything I try to do is just so difficult to contend with... my pain level has not been this bad in a long time, but it is surely making up for it right now...

Friday, March 20, 2015

Cure Click- Alzheimer's Clinical Trial - Thought some maybe interested in this!


Even those this is not "autoimmune" at this moment, I know many of us with brain fog issues, or that have had Alzheimer's in their family, like I have had. My Grandfather had full blown Alzheimer's and my Grandmother developed dementia also.

This can be done online, so I don't believe there is really somewhere you must "travel" for this clinical trial.


The link is above, and feel free to ask questions, if you have them. I know I participated in the "initial" trial information and I am supposed to let them contact me for more information, due to my answers to the first round of questions online.