I've had something on my mind, especially after going through what I watched my Mom go through, along with knowing my own health issues, my Grandparents health problems, and family backgrounds. Since I am already an "avid" advocate as far as Lupus, RA, and other Autoimmune Illnesses, as well as Arthritis and now Dementia's.... I've had something on my mind. For some, this may "gross" you out, but for me (and this is after a bit of thought), I feel like when my "time comes" I maybe able to make one more extremely beneficial act, that could help others in the future, even my own family down the line someday. I've been giving serious thought to "donating my tissue and/or organs" for research. Knowing the chronic diseases that I have, and that effect my own family, and seeing that "dementia's" tend to also run in my family, especially my Mom's side, I feel like that is a way, that I maybe able to help stop, find a cure, or give hope to the millions of others out there that suffer from these horrendous illnesses. This is a subject, that I am sure many people don't want to think about... but once you have had someone so close to you and you watch them go through some of these horrid illnesses, you have a deeper sense that you "need to do something" for your kids, Grandkids, and so forth on down the line, along with so many others that need to also find a reason why many of us suffer from them, along with how to "stop" these before they even happen, or "cure" them, put them into remission, or find some way to change what so far we still are fighting with. I also think after seeing the expense of a funeral, and fortunately my parents already had their things in order for that part of it, but the expense of a burial plot, and then the casket and so forth, I can see me doing a cremation, rather than going through the motions and expense of the things that go along with being buried. Now, I am NOT trying to gross anyone out, nor am I (hopefully) upsetting my own family with these thoughts... for they are just that....
things I've had time now to think about, and do some research on... and if I could help to make this world a better place in some way, then I feel I should do, just that. I also see that there is such a "guilt" at times, and a burden, even with funeral arrangements... I know that many go through thinking, well I cannot be "cheap" and not have a beautiful casket, or a huge amount of flowers, or have a very nice memorial service... yet when it comes down to it, the person, such as anyone close to you, does not care, more than likely if they are in a "pine" box, like used to be, or in a 10,000 casket, that is going to be in the ground, and certainly of no benefit to that body, for your soul is long gone, nor does it help the ones you leave behind.
To me, leaving a "legacy" of being a decent, caring human being, that tried their best to love their family, take care of them, and know in your heart, you did everything you could to do the "right" thing, is much more important than a 750.00 flower casket arrangement, that shall wither and be gone within days. Anyway, I've not been here "online" much. And I will be in and out for awhile as their are things to be done... and things for me such as even my neck surgery, that I've put off now almost a year, that I do need to do... so as I make a list of the crucial issues, and line up what is important, and what is not so important, I will be here, some, and then be out and about getting other things done also. I have to get my eyes checked.
My up close vision has gotten worse, plus I've not had that test due to me being on Plaquenil now in over 2 years, and I should be doing that yearly. So, that is one of the things that I need to do hopefully this week, and then of course the paperwork thing is almost a "hurry up" and then a waiting game. There honestly is no real "hurry" in any of it, other than how quickly myself and my kids want to work on it. Anyway, I may be away for again most of the week. I've got LOTS of painting to do, and getting those hardwood floors done... not sure yet exactly what I am going to do... I don't think completely redoing them is necessary... I think if I can get them cleaned properly, then apply the proper wax, and buff them, I maybe able to get by with that rather than go through the entire ordeal of "sanding, etc... on them..."
but one day and one step at a time... with the weather in the process of getting HOT, lots of things will have to be done "around the heat"... thank goodness a good portion of things are on the inside, rather than the outside for now.... keep my family in your continued thoughts and prayers... we are all just in still kind of a shock, and somewhat of indecision on some things... yet it seems all of us tend to be on the same page... so that is a good thing... Rhia
"Through my heart's work of writing, I share with you my complex journey a top the mountain, sliding down, crawling up, & living through the realms of Autoimmune Arthritic Illnesses. Taming "The Wolf" Thru each Day... One Step at a Time … Together We Are Learning to Survive. Please follow along, to New Beginnings - looking Thru the Window Pane of Pain in life where we shall find our journey leading us to - New Perspectives
Tuesday, July 5, 2016
Donating Your Organs for Research, Burial or Cremation, Chronic Illness, how life has so many turns, & trying to cope with Lupus, RA, Chronic Illnesses, and living..,
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