How Chronic Pain Can Lead to Autoimmunity Problems — Pain News Network

How Chronic Pain Can Lead to Autoimmunity Problems — Pain News Network: By Forest Tennant, PNN Columnist Every chronic pain patient must know and understand autoimmunity and how to combat it. Research on chronic pain has unequivocally determined that the chronic inflammation and tissue destruction caused by a painful disease or injury will produce autoimmunity. ...

and my notes about this also  ...  Goes to prove just how SERIOUS Chronic Pain that is not treated properly due to those pharmacists or physicians due to nw not wanting t prescribe the right medications and/or in the correct amounts for chronic pain patients. I feel even my own pain physician, a superior specialist in this field that I have been seeing now for well over 13 years, he put in my pain pump & has treated me all these years without any issues. Suddenly, over the past year he began to shy away from one of my meds after he was giving it to me monthly for all that time, I now have to continually "remind" them to get the prescription to me, & this last time, the "woman" who I did not know, (I called the regular lady I've talked to for all these years at her personal ext. and get a phone call back from someone I did not know who talked to me likeI was someone who was trying to "abuse" meds... it is infuriating for her to even know some of my medical issues that were none of her business. She began to speak to me as if she was my doctor! I am still furious. Those are the things more and more chronic pain patients are having to put up with even with a doctor who has treated them for years and/or the same pharmacist! It needs to be put to a halt & the "real" issues of "fake medications" are being made in Mexico and shipped over here under the names of real prescriptions here causing severe issues. there are people that have are in s much pain that suddenly get treated like this, lose their doctors, or the doctors quit treating them as always & they get so depressed they have been known to commit suicide, although that is hard to say it's true. - Here is an article by the "Pain News Network" that tells some of our story. I have lived with "chronic pain" since I was 17 years old when I suddenly even before my 1st child was born in 19799 having severe migraines. I have fought tooth and nail through every type of doctor, through every type of tests some of them multiple times, been treated like I was an "addict" & at now over 55 years old, still continue to have t at time "fight" for my own right to proper treatment.

As I turn to a New Chapter in my own health issues I am going to make my subject on my Blog and Social Media about the same...

 I AM going to change subjects on Social Media, Facebook & my Newspaper Online Line Daily... all of the things will still be there BUT I am going over more to "CHRONIC PAIN" & just how Horribly it Can effect the Body...

I was victim to that twice my doctor's said with the Heart Attacks at 40 and 50... "Broken Heart", & Chronic Pain.. I feel I am till here for a purpose... I feel that purpose has risen & I should grab Hold & take the subject...

How do you DEAL with ALL happening? COVID,FLU on its way,possible West Nile,Lupus,RA,Pseudo-gout,Chronic Pain, & now a "Death" of an Ex-Husband

 How do you DEAL with ALL happening? COVID,FLU on its way,possible West Nile,Lupus,RA,Pseudo-gout,Chronic Pain, & now a "Death" of an Ex-Husband... and the List goes on and on, Severe Anemia...  & WHAT IS NEXT?

and where do I begin? After over 290 "handwritten" pages about COVID-19 & the entire ordeal.. still there are many more typed, put on Facebook, on my Blog, in my blog, my head, & daily they come to me, at night they haunt me... Do I feel "guilt", pain, suffering, shame, am I supposed to be pissed off? Or am I supposed to "feel Sorry...  should I tell the story, or do I stay quiet? Do I try and get hold people & let them know. Or do I just allow it to play out as it is?

After so many years of supposedly him thinking we were the perfect "match" he suddenly "packs" what little he has and was trying to LEAVE BEFORE my Mom and I got home from an overnight trip! To this moment, as well as all others NO ONE KNOWS why he just "left"? 10 years of marriage, 13 years together... none of it made any sense... And I KEPT QUIET for WAY too long on the really horrible things he did and said, to anyone.

Here I was, chronically ill, with Lupus, RA, Sjogren's, osteoporosis, then Pseudogout & other issues turning my fingers "crooked" over one another. I was the bone that took care of it all, Although he "led" others to believe, even his own Mom, that HE DID everything! Bull!!! He barely cooked a meal every once in a while. from laundry, to groceries to cleaning, he did none of that..

So in 2016 when he just ups' and leaves that was bad enough. But, to NEVER come out with the truth... then in 2020 only 10 days or so before his 60th birthday... he disappears... has even the law, out looking for him...b & they find him "deceased" in some stranger's apartment..or as far as his good friends from that area knew, he knew no one where he was found. But, "Meth" & many of you know my own night terror with someone close on Meth... he was a coward, chicken, & has no love for his family, what is left of it, nor his "Step-Mom" whom he had considered his Mom all his life. And the few friends, that some had no clue about one another...  they are trying to get toxicology reports, and I suppose there could be an autopsy done. Since he was found without a bill fold, without his cell phone at 1st, he had no car, he had wrecked it a couple of weeks before... So, the "only" people that were close enough were out of town on vacation.. they did not find out till days after coming home. The law I guess finally found his cell phone to be able to try & find someone who knew for sure who it was.

I shall close this right now & give more as I find out, if I ever do...I feel for the few friends he had.. they will be totally in shock.

UPDATE December 23,2020

I spoke with my "ex-Mother In-Law" (she really will always be my Mother In Law, and a sweet lady, called me yesterday. I found out that although they never really found ALL of the DETAILS SHE WAS TOLD BY THE LAW ENFORCEMENT that Jim was found out in the country (lots of beautiful country side to drive through in WA State and admire) by himself, with on other evidence (I don't think they did an autopsy) that he had a massive Heart Attack. That was the reason I believe they ruled his death. It does not sound "right" to me... not like him to just drive off, and not take his daughter on an afternoon drive and not really tell her anything. Yet, I shall unless something else comes up, leave it at that hid died of a massive "MI". 

Lord knows, I DROVE MYSELF 20 MILES to the hospital in 2001 (I was 40 yrs old) to the hearest hospital, and even walked into the Emergency Room, about the time, I was much worse.. they immediately got a wheelchair, and into the main trauma room there. As they hooked me to machines, gave me an aspirin, and asked me who was with me, and I said "no one". I drove myself from home in Rice TX which is just about 20 miles from the hospital. If I had waited the doctor told me for an ambulance, or to get someone there to take me I would have not made it. That for one in his life he can say even though he would never suggest it, I was right to do what I did in order to live.

They gave me the injection of the "clot buster and it literally stops a heart attack from being worse if given in time. But he was putting me in Cardiac ICU until I was table then sending me to the Main Heart Hospital in Dallas. NEVEr EVER do I WANT TO RIDE IN AN AMBULANCE AGAIN! I believe in all that was my 3rd ride in one and it is a horrible experience, especially if you are very inured or in pain. 

As they say "Its like riding in an iron wheel wagon", it is so rough, bumpy and you are slipping and sliding, and everything back there is. But, I was fortunate to have great EMT's all 3 times that kept me calm on those rides.

So, as it went I did make it to the hospital in "mid-massive MI" BUT just in time for the medication to STOP most of the muscle damage to my heart. Knowing that, and knowing that I wanted to live badly enough, that I took the chance of driving on the Highway with blinkers on, and very slowly just in case I felt like I may pass out. Of course NOT a police officer in site when I really needed one. But.  made it, things were not nearly as bad as they had 1st expected.. and it must be that it was my time to STAY HERE... I still had "work to do here on Earth first"

Knowing that, and knowing he may have known something was wrong, I believe he did not want her to try and save him (his daughter). I feel he "knew" and was almost like going ahead to "leave Earth" because he just could not handle anything else. ad, sad, sad, for everyone, but especially his daughter that he had came in contact with like 30 years after not seeing her. 

So, I just pray she gets the help she needs to get herself back together and live on to know they had some time together.

Friday's addn of my Daily Newspaper, Health, RA, Lupus, Chronic Pain and more!

Friday's addn of my Daily Newspaper, Health, RA, Lupus, Chronic Pain and more!

http://news.autoimmunearthriticsystemiclife.com/#/signin

I-Pain Send in your submission to possibly get an article in the iPain Living Magazine!

I-Pain Send in your submission

We are accepting submissions for iPain Living Magazine 2020 - Summer & Fall Eds. Submit articles for consideration to media@internationalpain.org 700-1000 words - Magazine Ads contact media@internationalpain.org #iPainLiving

Pacemaker Placement, Hip Bursitis both hips severe, shoulder surgery & fear of brachial plexus issues (after reverse shoulder surgery about 5 years ago)

I had my consultation yesterday with my Cardiologist about the Holter Monitor and the low heart rate about 17 hours a day... we DID decide to go ahead with the pacemaker... everyone and everything I've read, talked to etc... even a couple of my other doctors feel it's a good idea, and "may help" some of the fatigue, the weakness in my legs, even the spider veins in my ankles, plus give me back more energy that I seem to be "losing" in the past year or so... I just can't seem to be able to keep up with the house, going to the market, and just days in general. Even though I am up and around, I seem to just be so "slow" and feel like I run out of energy much sooner that things to do... 

NOW I KNOW that some of that is the RA, the Lupus, "age" of course, the chronic pain and so forth, and there are no "guarantees" how much the pacemaker will help, but I feel it will give me back some of what I seem to have lost as far as stamina, especially outside doing my yard, flowers, and I so love being outside when the weather is nice (by the way I drove through the Cemetery yesterday and those HUGE OAK trees that looked like they just completely died that are in a row of about 10 where my Mom and Dad's graves are, THEY ARE COMING BACK OUT!!! 

I was so thrilled to see them leafing out..I think when they were building all of the new apartments right next to there, they must have "sprayed" something or did something to really knock them down hard, so when I saw each one slowly but surely with the new growth on them, I knew my Dad was happy... that is why they picked that site... Dad always loved trees, lawn work, gardening and so forth... anyway, I think wrote that I got the left hip injected Monday, and even though I have to wait (this Orthopedic doctor) won't inject them at the same time and then he makes me wait three weeks before I have the right one done... which sucks... it would be better for me to have it closer together to SO HIPS are better at the same time. But I know due to injecting the joints with corticosteroids they like to be cautious.... 

I go to the eye doctor tomorrow, I am really "past due" since I take Plaquenil, and it can cause Macular Degeneration... & I usually go yearly and I've missed I think almost 2 years..jus due to everything else, it seems I never can find the time plus I can "check them at home and do frequently with a special chart I look at. But the double vision and my vision in general has also changed again... so I "may" need new lens and HOPE NOT! All of these doctor co-pays, and then the Outpatient charge for anything I have done like the Endoscopy and now the Pacemaker, have a larger co-pay now... and of course the hospital always wants is ALL up front.... and hell my glasses if I need new lenses, the "prism" in the for the double vision makes them cost even more...plus I got ready to make the eye appt and found out my "usual" eye doctor retired! 

Luckily, I had been to another one last time, and I really liked him... and he is close, just over in Waxahachie, so at least it's not Dallas. But, I went to make the Endocrinologist appt that my PCP wanted me to see, and SHE CAN'T SEE MY TILL LIKE THE END OF JULY!!! So, I found a couple that take my insurance and they are closer to me, although still in Dallas not as far as this other woman... but I've got to get everything else "caught up"... I have to see my other Orthopedic Surgeon since we think my lumbar spine is causing a lot of my severe pain also in my hips and down my legs, plus the shoulder he replaced... it's not been "the same" and feels almost like that "brachial plexus" ball of nerves, are on fire...I can't stand to "touch my right shoulder" in many places..it was never "the greatest" but was so much better after the replacement BUT after that 2nd cervical neck surgery, (I know they had to have me lying in a very odd position) they must have had that shoulder in a position, that ever since, something is just wrong.... so he is the one that does the spinal surgeries, the shoulder replacement and so forth...

Pain Patients Get Relief from Results Positive from on Opioids from U.S. Agencies!

Pain Patients Get Relief from Results Positive from  on Opioids from U.S. Agencies!

from the Scientific American

https://www.scientificamerican.com/article/pain-patients-get-relief-from-war-on-opioids/

By Claudia Wallis on April 19, 2019

Ever since U.S. health authorities began cracking down on opioid prescriptions about five years ago, one vulnerable group has suffered serious collateral damage: the approximately 18 million Americans who have been taking opioids to manage their chronic pain. .... Red rest of article on link above...

© 2019 SCIENTIFIC AMERICAN, A DIVISION OF SPRINGER NATURE AMERICA, INC.

Lupus Flare, RA Flares, UTI's, Kidney Infection Severe Pain Stiffness, Swelling and the list goes on...

Lupus Flare, RA Flare, UTI's, Kidney Infections... All of the Severe Pain, Tiredness, Fatigue, Joint stiffness, Swelling and WHY Can't they stuff fIND SOMEWAY TO RID US OF THESE HORRIBLE CHRONIC AUTOIMMUNE ILLNESSES????

Of course I get "good news" over the whole endoscopy/Colo-Guard thing... THEN after suffering for WEEKS HONESTLY with what I knew was a Severe Lupus and RA flare(s).... The pain was so horrible I honestly thought my meds were "placebo's".... 

of course I knew better, but the stiffness, pain, in my hips, lower back, ankles, thumbs, wrists, shoulder, all were just about to drive me nuts. I had appts. already with my PCPC, last week, then I see my Pain Doctor this coming Monday and was supposed to also see my rheumatologist Monday so I only had to make ONE TRIP to Dallas, - 

My Heart Doctor and I have an appt at the end of April to discuss the possibility of the pacemaker, which I had been outside during the past couple of weeks, when we had "half decent" weather trying to catch up on killing a back yard FULL OF KNEE TALL WEEDS, from so MUCH rain and more still to come, and trying to do all of the "spring stuff"... but I was in so much pain, so tired, weak, dizzy at times... I just felt it was the Lupus and tried to move through it, until the flares were better. By now, usually I would have went to Urgent Care, got a shot of corticosteroids, the huge 14 dose of prednisone, to get over the flares, but as I said I already felt so lousy, wanted to get stuff done in between the sofa, TV and trying to stand the pain... and get groceries,
etc... 

so when I noticed about 10 days ago or more now, I was having to pee so much, which hot weather, drinking lots of green tea and water, and the Lasix, does that to me... but I noticed it was "way worse" than the usual.. then I noticed I was burning, and the pain began to feel more like "kidney stones" as I had before, but it had been years ago from the last time.

I had just moved back here, and this was before I had my Medicare, but I spent 4 times in one month, at the ER in a neighboring town, with 4 kidney stones,.. trying to get them to pass with lots of IV fluids, pain meds there, then they would sent me home with a few, and within about 5 or 6 days, the pain was back and I was back at the ER... repeating... finally I passed all of them, but it was a nightmare... after that, I have probably had a couple of small ones I passed... but I don't usually get UTI's and if I do - most of the time,

I really don't have "symptoms"... or thought I didn't, but this time I KNEW this was more than Lupus and RA Flares... sure enough, a severe UTI, so shot of corticosteroids and a huge 14 day round of Prednisone, and Levaquin for the kidney infection... I got the meds on Wednesday last week, and even yesterday, I am still not getting over any of it as fast as I felt I would. SO yesterday, my Rheumy's office called late to tell me they are NOT in the OFFICE MONDAY! So that means TWO trips anyway to Dallas, because I have to see the Pain Doctor Monday, my pump has to be filled....

I have SO MUCH I "want" to get done and some I NEED to get done, but I also know I HAVE to get WELL!!!! I am thankful for the good news on all of the colon and endoscopy stuff... really, but I just wished these stupid other CHRONIC ILLNESSES and PAIN would just give me a few months break, I HATE to ask to "go up" on my daily Prednisone which now is 5 mg daily... BUT it looks like if all of the other meds, Plaquenil, MTX, Enbrel, Prednisone small dose, etc d not start working better after these flares I may face a higher dose of Prednisone for a at least while, then taper back down again,... I still have the appt also with the Endocrinologist at the end of the month ... to see if the Thyroid and/or Parathyroid is still too HIGH and what we do about that. From what I've read and researched, the Parathyroid often is cause from a small tumor (usually benign) and may take a small surgery to get rid of... and of course "thyroid: issues run in my family, and medication often fixes that, unless again you have a "goiter" that has to be removed.... so again lots of "stuff" (when it rains does it ever pour)!

More Information Below on the Parathyroid gland and the Thyroid Glands, What they Do in the body, and all of the issues that can happen due to any diseases of these glands....


http://endocrinediseases.org/parathyroid/parathyroid_background.shtml


http://endocrinediseases.org/thyroid/thyroid_background.shtml

From RA, Chronic Pain, Lupus, to "PTH" labs "off" and more new specialists like an Endocrinologist (HAPPY HALLOWEEN)

"Chronic Illness and Pain - NEVER TAKE A HOLIDAY! Yet, I hope your Halloween is filled with "good spooks", wonderful costumes, party with friends, "candy but not too much".... and that your Autoimmune Illnesses will give you a reprieve for an evening...
Alas, then we can say "TRICK OR TREAT"!!!!!

Weather, Chronic Pain, Pain Pain and MORE PAIN!

Any and everyone of us here, there and yonder, knows how much the "weather" can effect chronic pain. Other illnesses such as Lupus, RA, Osteoarthritis, Joint replacements, cervical spine surgeries and problems, and many more illnesses are "effected" by weather.

Oddly enough, it was not that many years ago, that I would tell my doctor(s), not that long ago, ONE doctor saw you for just about everything.... that THE WEATHER MADE MY MIGRAINES WORSE! Back then, and as I said NOT that long ago, they would look at me like I was nuts, bonkers, and just needed some reason to "complain", go the the Emergency room for the dreaded Migraines that plagued me from the time I was about 17 years old, until I then began having "Lupus Migraines" about 10 years ago.

Lupus Migraines, as I call them are an entire different "ball game" from regular Migraines. Used to pain medication worked for the other migraines. Even though I had to fight tooth and nail to get it often times, my severe headache, nausea, the grogginess, the feeling of wishing you could remove your head from your body was horrid. Yet pain medications handled the problem, most of the time.

Then when I began having Lupus Migraines, no amount of "regular pain medications" in the world will do a thing for them. I must have a huge injection of corticosteroid, and then 10 to 14 days of Prednisone, the "step down" dose, in order to get rid of that type of Migraine.

Fortunately, getting that help is easier than having to go in for any type of narcotic pain medication. Yet, I still have to have those also, for the other "many chronic daily pains"I dread, must still have my pain pump, and I have pills for "break through" pains, especially during the times when the weather acts nuts, causing it to reek havoc with my entire body. I "had the surgeries" to help rid me of the other pain, from the joints that have just disintegrated over the years. I tried to tell doctors way back in my twenties, that I had "genetic arthritis". Again, although not that many years ago, they just didn't want to accept the fact that "someone as young as I was" could have that bad of joints. Yet, it was true. I tore cartilage out of my knee at 15. But, by the time I was 21 it needed surgery again. Then the other knee, my elbows, my shoulders, all began giving me problems. I had them injected more times than I can count.

After the many, many tests, scans, injections, medications, even was hospitalized for a few days to try a medication that was "dangerous" to my heart, and it didn't do one thing for the headaches.

After having several more joint surgeries by the time I was 35, I began getting through to some doctors, that these problems were not all imaginary, but were truly issues that I probably was born with. I even had double hernia surgery about 4 years ago! The surgeon told me I was probably "born" with those areas "weak" like some infant girls are, and after years of walking, lifting, bending, picking up something heavy and so on, that they finally became fully herniated, and had to be repaired. Even that was a nightmare. I could Feel them, I could SEE them, yet 3 doctors and even a sonogram didn't pick them up. I finally went to a surgeon I trusted and HE could feel and see them. HE knew what to look for, and he also was well aware of some women, were born with those spots weakened. And some went on to develop hernia's that needed repair.

Usually you don't catch me "lying around" or doing basically nothing. I fully believe that laying around, even when you feel like "hammered hell" can just cause you to feel worse, hurt worse, and give you a lack of energy, lack of muscles, an you question, which is better? Am I harming myself worse, by getting up and doing  things? Or am I better off "working through the stiffness, pain, swelling, and all of the side effects that go along with these illnesses?   

What sucks is that although I usually DO feel better up and moving, even if it is slowly, it still at times takes all the energy and will power I can muster these days.  I have people who stare at me when I park in the handicapped place. It's still hard to have "invisible illnesses". As much as is out there about so many of us suffering, with these horrid diseases, yet there are still "uneducated", "mean", selfish people that want to make fun of, or cause us more grief that we already deal with on any given day. Just sitting here trying to type had caused my wrists, my upper back, my hips, all to hurt like hell.

So, me now trying to sit down and write a 3rd book, when I need to spend HOURS typing it out, almost seems as if it will never happen.                                                                                                                                                   

Keith Urban Lyrics, and trying to hold myself together after... 2 years today since Mom passed away, and the loneliness of the loss of her, Dad, Tazzy, Bub's and my love..

Yes, today and yesterday have been difficult for me. Yesterday, things, several things really hit me, right in the gut, literally. By the time I got home from Wally World, I was physically sick to my stomach, and felt horrid all day long. It was so bad, I never ate anything for dinner at all. I fed the pups, and they "knew" "Mommie" was not feeling well. 

They cuddled up with me on the sofa, and would not leave my side. of course today is the 2 year anniversary of my Mom passing away. In my mind, I've played over and over what our doctor we saw, usually had our appts on the same day, used to tell her. He would say that she was going to "outlive" him and I... not that he meant that "badly"... because of course with my health issues, he knew that it was a true statement, but he wanted my Mom to pull herself out of where she would "think she was too old for this, that or the other, so it was his way of telling her at the time "health wise" Mom was much more "healthy" than many of us. Yet, although she was, never did he even believe how quickly she went downhill when the Lewy Body Dementia hit.

 I had seen signs for a while, before she really got so bad. Here and there, being forgetful, losing things, not recalling events, yet of course at 80 years old, heck at 40, 50 and 60 years old many of us are "forgetful"... I blame the "world" we live in for the stress and strain, the toll our minds and bodies take these past 25 years or so... things used to be so much simpler, it seemed the "burdens" we have now, were not as they were back then. 

From the selfish ways many of us have abused our water, land and air, to technology that in ways is wonderful, yet in ways, it has caused families to not spend "time" together... kids and parents on their phones, the computers, playing games, you name it, we tend to "have something else more, better, important, than a family meal together, or a quiet night without a TV, phone, or computer. I realize that NOT everyone has given up what family time is, and it seems that some have tended to "go back" to that time... when everyone was at the dinner table, no TV, no phones, just dinner, and asking one another how their days were. I had those all my younger life... and until my kids were well into being teenagers, for the most part we also spent nights together, around the dinner table, talking to each other, and caring. I know that has carried on to my daughter and her family. Of course we are "busy" but for the most part, her children, husband and her spend their dinner time together, sharing in one another's lives. There is so much that I think about when i think of my Mom... 

Mom never "gave me crap" about tattoo's, belly rings, tongue rings... she may have not agreed, but, she knew that I had my own personal reasons for all of it, and she was never one to put me down for making those choices. Mom spoke her mind though... anyone that knew her, knew that what came out of her mouth, was her personal thoughts, and she expressed them. Not that it was always "in a proper place" or said in a "proper way" but it was Mom, and you had to accept that part of her. So often, she was overly concerned about my health and me. Sometimes to the point I think she worried herself way too much. 

But, she knew the pain and suffering I endured, mentally, physically and emotionally, and many times she told me, she could never "brave" what I went through daily. Yet, I always told her, that she need not worry, I am a survivor, and what is, what happens, why it happens, I don't know but I do know it serves a purpose. She was so proud of me... when I went to college and worked full time, and took care of my home and family, she was my greatest fan! She urged me to oil paint, and especially all of my poetry and writing. When I published my first two books, she cried tears of joy, for she always knew I had something very special, that gave me the words to write, and how much I touched the hearts of those around me. She was always the one to encourage me, whatever it was, she knew I could do it. LOL, so often she told me I should have went to medical school. I would have been such an asset to many as a doctor, or in research. 

When I got to go to Washington DC with the Arthritis Foundation, that was a moment that she also cherished with me. My walls around my desk are covered in the awards, the recognition, the paper clippings when I had an article in our local paper. The Proclamations for Lupus, for RA, signed by our Mayor and some signed by our Governor. Mom was my best friend, after I was alone, she became the one that stood with me, that talked to me, that helped me carry on, even though I was in such a mess after being separated. She understood, because after Dad passed away, Mom was very frightened of what might happen. Coming back to TX was a ver difficult thing for me, I never wanted to leave Seattle, but she needed me, so I came back here to help her. I miss her every day, and even though Dad passed away n 2005, I still miss him. 

Often thinking to myself, that we would be fishing today if he were here. Or I would be visiting, or we may be going to the casino tomorrow if she were here.... all of the things and many many more that I so miss... from the little things to the small things, after the loss of my parents, losing my Pug Tazzy, and then losing Bub's after I broke my hip.... losses that cut right to my core, and then Jim no longer here... my world on some days seems so upside down..... So, Mom, I hope you know how much I miss you and Dad, and there are days it is s struggle... but I put ne foot in front of the other and try to----- carry on

Terrible and Frightening News from the Pain News Network for Chronic Pain Patients and those following Major Surgeries and More!

Pain sufferers and patient advocates are overwhelming opposed to plans by the U.S. Drug Enforcement Administration to further restrict the supply of opioid medication to punish drug makers that allow too many of their painkillers to be diverted and abused. ... news story follows down at link:...






https://www.painnewsnetwork.org/stories/2018/5/9/critics-say-dea-plan-could-worsen-opioid-shortages

An Article in "Mad in America" Stopping the WAR on Chronic Pain Patients

Stop The War On Chronic Pain Patients

Here is the 1st paragraph of the article....  "

Readers of Mad in America are deeply familiar with the tangles of public policy which surround voluntary or compelled interventions with psycho-active drugs in people who are experiencing life crisis. Some readers will also be familiar with a different kind of crisis and its policy tangles, in the difficulty which many people encounter getting medical assistance for chronic intractable pain."

https://www.madinamerica.com/2016/05/stop-the-war-on-chronic-pain-patients/

Hoping a better 2018! Lupus flare, RA flare, Flu virus, Chronic Pain severity, epidemic, wishing for a better year than since 2014 wanting to get back to writing, blogging and advocacy work

Putting "hopefully" my writing, posting, advocacy and writing areas of my life back in the forefront. The past two years, really more like since late 2014, seem to have been a nightmare. 

I've had good things happen, but losing two of my fur-babies, my Mom getting ill so quickly and passing away in 6 months, losing my Mom's "baby" sister, losing my marriage and not sure why yet, having a pain pump replaced, having a fractured hip and spending Christmas 2016 in the hospital and inpatient rehab, the a very complicated neck surgery in April 2017 that took me months to just get out of a hard collar with, and now my Lupus and RA are really giving me heck... much more but those are a few of the "highlights" that really put my several years previously in a spot where I felt I would NEVER be able to get back to my advocacy, activism, writing, blogging, posting... and the things I want and love to do... And I am still going through stuff health wise, my neck is really hurting again, and has been, but my shoulder as I say below, that has already had a complicated replacement began acting up, right after the last neck surgery. We have changed RA medications trying to get the RA flares under control, and my lower back and legs really beginning to bother me again...

I am not sure if the ridiculous weather we are having is a huge factor, but generally the WEATHER has always had a huge impact on me, when it comes to chronic pain, and migraines.... way before I could ever get a physician to "agree" with me, I KNEW the weather effected my severe migraines when they were so bad for over 20 years of my early life. 

Now all doctors and health professionals agree that the weather, temperature, humidity, erratic weather, cold one day, hot the next, all of those things and the barametric pressure have sometimes severe effects on many illnesses, especially chronic pain...

I ASK that each of you the "follow me" here, on my daily newspaper, through Facebook, Twitter or wherever to keep me in your thoughts and prayers as the year progresses. I REALLY want to get back to those things such as my writing and blogging... more on the advocacy side, but even sitting here at the computer puts me in such pain at times, there are days it hurts to sit, stand, walk, lie, no matter what I do, it is severe on some days, and here lately MORE days than not....

BELOW is a POST from my Facebook page, where I had been commenting to a friend of mine who is going though some frightening issues with her liver, and her Diabetes. So, as I posted this, I wanted to "add" it here also... my numbers honestly here on my blog have fallen so much, and I know the holidays effects that, but also me not able to post as much, put up as much relevant information as I usually do... I desperately need to update the look and feel... I know it's getting outdated, and it is a matter of having the time to do those things, and those are what I really want to be able to work on....

I APPRECIATE those like yourself, that give back the feeling that "I matter"... I try my best to let others know I do appreciate each one of you that take time to even give a "thumbs up" I realize not all of us have time, or feel like Posting, but I always know someone "cares" by just a heart, a thumbs up, or a "face".... you too I realize have been through so much. I have to "say something" about a "comment" I read the other day. Some one made a comment that Facebook is NOT THE PLACE to "post your personal problems"????? WHY would we "want to connect here at all" if we were not looking for others either like ourselves that "need that extra push up" every once in a while, or to "see" we are NOT alone in this come and when I "post" personal issues, which health is very personal I think, 

I am NOT looking for an answer or someone to totally agree with me, or what, it is MY way, like my blogging and writing (partially)... the social media is a way to connect for many reasons, but since I have "no really close family or friends physically that I can "see" ) my son and daughter are about the only "close family" I have left, and my daughter is 8 hours away and we talk probably at least 3 or 4 times a week, but she cannot just "drop her kids, family and husband" to run 8 hours up here, and although my son lives close by, he has his own things also, he has been fighting with "FM" now for a long while, so he is trying to re-educate himself, by some short classes, where he can do certain jobs, that the ones he used to do, due to the FM he no longer can do, lots of very hard physical labor... even though he is 37, age as many of us know with some of these horrid illnesses, syndromes, chronic pain issues and so forth, AGE has nothing to do with it.... so he sends me messages, and if I NEED him, he could be with me quickly, and we keep up with each other, 

BUT he also knows ME, I really 'don't want" the feeling that I have to have someone doing everything for me. I LIKE doing all that I CAN DO myself... and it is hard for me to even ask for help, because all the years I did everything, from hanging ceiling fans, to painting, any kind of home improvement just about, the lawn, and so many things I've loved to do, I KNOW that even since my cervical neck surgery last April, I have "overdone" some stuff. I PRAY my neck is not messed up again, or my right shoulder, that ever since the neck surgery, it is the RIGHT ONE that has already been totally replaced by a "reverse total shoulder replacement" about 6 years ago, I think, but it has given me hell ever since the last neck surgery... of course I realize 'some things" I had been doing I've had to "stop" and either let my son do it, or my neighbors help some, or I just let it go, knowing it can wait, other than an emergency thing at the house, some things that I just could NOT stand to "let go" I've had to and I am STILL learning to "let them go"... but being alone with the pups now, I do as many things as I feel like, or that I can do, if possible.... yet trying to learn to say "no" I can't, or sit down and say I just hurt too badly today, etc... those are very hard things for many of us to do... not in our "genetic makeup" :)

"2018!" HOPE for better health, less pain, yet it's not beginning very well, Lupus, RA flares possible & weather is literally I believe reeking havoc with me!

Praying for RELIEF, from Lupus, RA, Chronic Pain, and trying to remain hopeful that being in pain does NOT keep me from doing the things I want to do for 2018

The weather here like many places has been down right bitter cold! We were in the teens' night before and last night, at 17 this morning when I first got up. Fortunately, so far there has been no falling precipitation, or it may have been really bad here. I know I've heard the ambulances etc going out off and on now for days, I am sure many people ill, or get too cold etc. I am having a very difficult time "coping" with everything. I've so wanted 2018 to begin with new things to do, to accomplish, and pray that pain and illness don't plague me. Yet, I've been suffering with a severe headache off and on now for really 2 weeks, and when the weather got so cold, I believe every bone in my body hurts. I "may have a Lupus and/or RA" flare.

I feel like after they took me off the Methotrexate, that keeps the other medications from working as well. We did it due to me having infections so much back a good while ago, and now that seems to be somewhat "better" BUT the pain has been so horrible, almost unbearable, and for me to say that, and I am talking about over and above all of my medications, the pain pump and so forth. I FEAR going to the doctor's, one fear is that my neck could be messed up again. If I were to go to Urgent Care they could give me an injection of a corticosteroid along with a 14 day supply of a huge dose of prednisone, and if it is the Lupus and/or RA, then that would definitely help the pain, stiffness and inflammation.

Then I've had hell with my left elbow for a long while. In fact the Orthopedic Surgeon who did my knee replacements etc, told me several years ago that my left elbow really needed another surgery on it. Well, he injected it and it went a long while without giving me hell. But in the summer when I was doing all of the windows, getting them open (the old windows that someone painted shut inside) so I could open windows when the days were nice, plus I can clean them better, and be able to paint them etc... and it took a couple of weeks, but I got all but about 3 in the house that so far I've not been able to get open. One of them has a crack in it, so I didn't want to be messing with it, I JUST put in the one glass pane that the hail broke out, 2 or 3 years ago!

But, I have a couple more than NOW since I know I can actually do them myself, when the weather warms up I want to replace any that are cracked. Many of them have the initial glass that was put in them in 1950 when the house was built, so the glass is very brittle, after so many years... anyway, I had surgery on the left elbow in about 1998 or so. In fact, Dr. Roye who had just began practicing in Waxahachie, did the surgery. He fixed the elbow and had also done work on my left shoulder. But, the elbow has kind of like pins or screws in it, and they have always "poked" out so you can see them.

But, they had been right "above" the upper part of my elbow, and I accidentally was working on one of those windows and it was very loose, rather than so tight as most of them. I knew I had to prop it open in order to do what I needed to do, so it would not come crashing down on my fingers... I had placed a piece of board under it, but I was trying to get a screen in where that storm window had been used for an A/C unit. When it went out and I got the new one I moved it out of that window and wanted to put the screen back in it... but it is harder to do than you think, the way that screen has to go high up, then slide down into that window is difficult when you are having to go under the old inside window. Well, I started to put the screen in and try to get it up high enough to go into the window, but you also have to push on the outside of the storm window in order to get the screen to go in correctly. So, I knocked that darned board down and down went that heavy wooden window right down on that elbow where those screws are...

once that happened I was in so much pain, plus the screws actually MOVED down towards the bottom of my elbow than where they had been... well of course the hip fracture, then the neck surgery etc. and although the elbow pops now and then, it really has not hurt that much. Up until the past about 4 or 5 nights... it wakes me up every morning about 2AM from my elbow down to my fingers "numb" yet "on fire".... like it has fallen asleep so badly, and now as it "wakes" up that PAIN that comes with it! At first I thought it was my wrist because I have carpal tunnel, and I had the right hand fixed, but other things came up so I left the left one alone.... but I know it is not "just" my wrist down, and actually starts right above the elbow and radiates down into my thumbs and two sometimes 3 fingers on the thumb side. I believe I have Cubital tunnel syndrome which it what I think I had when it was repaired in the late 90's....

and after hitting those screws and it was already giving me problems, I feel that really did a number on it.... BUT, then for 2 nights beside HORRIBLE NIGHTMARES. I am woke up by my left LEG from my knee down with a very deep terrible ache! Bad enough it woke me up again last night. I got up took some meds and laid back down, but by 4AM I was up with the both of them hurting again.... What truly irks me about all of it, is that I've prayed and prayed to just have "time" to not be in so much pain, to not have horrible health issues, so I CAN BLOG, WRITE, AND DO SOME THINGS I WANT TO DO! IF between not sleeping due to severe pain, and then the weather really making it worse, and maybe some type of a flare, I hate to being griping but I pray the rest of 2018 is not like the 1st couple of days have been. I am almost embarrassed to "whine" about these things but damned it's just so hard to live with and not be able to talk to anyone about it....

Check out my Daily Newspaper for the latest articles on Chronic Pain, Autoimmune Illnesses, such as Lupus, RA, & joint issues, plus many more "health related" information!

This is just one article from today's addition, and I have discussed this several times over the years, even my Mom used to say before she passed away last year, she did not know people could go and withstand the types of chronic pain she saw myself and many others go through....

 

http://www.clinicalpainadvisor.com/chronic-pain/suicide-attempts-in-chronic-pain/article/697827/

Here is the Latest Addition of my Newspaper for today Friday 24th, 2017

http://news.autoimmunearthriticsystemiclife.com/#/

Life Chronic Pain Autoimmune Systemic Diseases & Dementia

Pain News Netowrk and & CONGRESS, DEA and governement STILL CAUSING GRIEF TO CHRONIC PAIN PATIENTS!

ALL OF THE STORIES BELOW THROUGH THE PAIN NEWS NETWORK! BARBY INGLE ONE OF OUR HUGE VOICES FOR CHRONIC PAIN HAS PENNED ONE OF THESE ARTICLES ALONG WITH SEVERAL VERY GOOD COLUMNISTS.... STAND UP AND NOT ALLOW THIS TO HAPPEN - THIS IS INSANITY!!! THE MAJORITY OF TRUE CHRONIC PAIN PATIENTS ARE NOT "ADDICTS" AND DO NOT GET THEIR MEDICATIONS ILLEGALLY OR USE ILLEGAL DRUGS SUCH AS HEROIN!!!

 

 

 

 

 

https://www.painnewsnetwork.org/stories/2017/11/12/managing-your-emotions-while-living-with-chronic-pain

DEA Cutting Rx Opioid Supply in 2018

https://www.painnewsnetwork.org/stories/2017/11/10/dea-cutting-rx-opioid-supply-in-2018

https://www.painnewsnetwork.org/stories/2017/11/3/fda-may-require-opioids-be-packaged-in-blister-packs

https://www.painnewsnetwork.org/stories/2017/11/6/3-reasons-the-opioid-crisis-is-getting-worse

"National Pain Report and a New Book about FM and CFS....

 

FIBROMYALGIA and New Book You maybe interested in.....

http://nationalpainreport.com/new-book-gets-to-the-underlying-cause-of-fibromyalgia-8834612.html


Since I really LIKE what National Pain Report says, here is a new book they are talking about, and it's in regard to FM, (Fibromyalgia) which I know MANY of you have, have been diagnosed with it, or told you "may" have it or what they also referred it as, "Chronic Fatigue Syndrome"... I know MANY years back when I was trying to find answers to my "nightmare of several times a month migraines" I had several physicians tell me they thought I "may have" Fibromyalgia, or then also they referred to it as, Chronic Fatigue Syndrome... 

back then it was so NEW, they really had NO CLUE about it at all what it was, what caused it, or EVEN IF IT WAS A REAL DIAGNOSIS... I know MANY women continued to "hear" it as a diagnosis, when doctor's did not KNOW what was wrong, with WOMEN especially so it was either you have FM, CFS, or you are "stressed" or "depressed".... which aren't we ALL those things, whether we are "chronically ill" or NOT... plus being stressed or depressed it NOT just for women, but MANY men now days also... but since I realize that IMOP (which my opinion is not really a matter here) but I THINK that FM is an "autoimmune illness" just as any other like Lupus, RA, Sjogren's, JRA, and the